Hello, from Texas...I was diagnosed with lupus 14 years ago and in 2005 I lost both of my kidneys. Like many of you I have my good days and my bad days. Good to know there is someplace I can come to express how I am feeling. Thanks
Hi and welcome to the site. It is important to have a place you can talk to others that are going through what you are and undetstand how you are feeling and give you support and advise. I hope to see you in the chat room soon and get a chance to talk one on one with you. I hope you find the site informative and supportive. I hope that you are feeling well and doing well also.
Welcome to the Forum. Im sorry to hear how badly affected you have been with your Lupus. We have many members who have gone through kidney problems but not many have actually lost their kidneys completely. Are you on dialysis or did you have a kidney transplant?
I know you will find this forum of great support and comfort to you. Our members are just about the most generous and giving people you will find anywhere in the world. Feel free to post any questions, or indeed any anxieties, you have. Im sure your experiences will also be of great help to others as you get more used to posting.
Im glad you made your way here. You wont regret it.
Hi and welcome. yeah it is a good place to be able to chat things over etc, think my poor husband gets fed up with my 'updates' ... I certainly do:lol: so it is good to come on here to get support, advice and friendly banter!!
I am sorry about your kidneys. Does this lead to dialyasis 3 days a week? I certainly hope not. I did not know we could live without both kidneys. I hope your lupus is more stable now as it sounds like you have been through a lot.
I hope to get to know you better and feel free to join us in the chat room sometime.
I am so sorry that you have had such a rough time of it, the loss of both your kidneys has to have been hard...I am very newly diagnosed...SLE and Sjogrens, and the Dr. is testing me for RTA...I have had 15+ kidney stones and also have a bladder disease...with that said, I have to be honest, the kidney problems are one thing that is frightening to me...I hope you will let us know how you are fairing??