Hello,
I am so sorry that you have had such a rough time of it, the loss of both your kidneys has to have been hard...I am very newly diagnosed...SLE and Sjogrens, and the Dr. is testing me for RTA...I have had 15+ kidney stones and also have a bladder disease...with that said, I have to be honest, the kidney problems are one thing that is frightening to me...I hope you will let us know how you are fairing??
Take Care,
I