I have watched my beloved sister slowly and then quickly disintegrate with a fearful combo of lupus? Scleroderma? Raynauds etcs:She is freq hospitalised now with serious chest involvement, needs wheelchair to move, O2 to breathe, and days of a girlie night out are far in another life. Shes married, 42, 2 kids, lives outside Belfast and is bright and brave. I'm in Australia trying to do whatI can long distance. There is no real help in N.I. There seem no rheums with spesh knowledge of immensity of Lupus field, and for the bits of her body which keep breaking down, the specialists divvy up and play around with her precious life. She is due to see d'Cruz in London on 25 Nov if fit, but travel is virtually imposs. Anyone know if there is someone closer,or if tis poss to get him to come over to her? Feel so useless.