[Werewolf]

Hi there,

As I am new here, I thought it would be nice to open a topic, but I have no idea how to introduce myself, lol. I am nearly 18 years old and living in the Netherlands, I have had symptoms for almost 2 years now. I don't have a diagnosis yet, but all clues are pointing into the direction of Lupus. The official test results will come in a few weeks.

So I hope I can visit this boards without an official diagnosis.

Cheers,
Werewolf

 

[angieb]

Hi
Welcome of course you can . i have no official diagnosis yet either but have found this site a great help. Eveyone here is very supportive and helpful. hope you find your answers soon.

 

[LolaLola]

Hello Werewolf,
Nerve racking time for you. Hope it all goes well. You are very welcome here.
x Lola

 

[cad]

Hi Werewolf,
Welcome to the site, it really is a grea place for support, advice and info. And lots of people come on before diagnosis and find it really useful to discuss symtoms and other things.

Good Luck with your test results!

Take care

Cassie

 

[Maia]

Welcome! I hope you get some answers and some good treatment soon. Two years is a long time to suffer without knowing what is causing it... definitely a frustrating and I'm sure painful position to be in - in various ways.

Keep us posted... and do realize that lupus is not always a diagnosis that requires any certain test result to be positive. It can be diagnosed in other ways, but will require a truly expert rheumy to diagnose it then or a dermatologist if you have skin symptoms too.

 

[Werewolf]

Thanks for the warm welcome

I do have skin symptoms indeed - I have had a butterfly rash and sun sensitivity my whole life, but before I never spent any attention to it really. Just like occasional blue/dark purple skin with orange spots on my hands, arms and feet, mouth ulcers and 'fungus' behind my ears. I was sent to a dermatologist last summer because I had plummer's nails and I got allergic to the antibiotics prescribed by our GP. Then the dermatologist took a nail and some blood (to test for autoimmunes) and gave me some other meds that - we thought - were responsible for numbness and heavy discoloration in my hands and feet. Due to that, I got to the neurologist who sent me to the rheumatologist, as where I am now. She tested my blood and urine again, but those were the only 2 weeks in the past 5 months that my fingertips didn't feel numb. Can that affect the results, or is a period of 2 weeks to short to make any differences in my blood? The numbness is now back again, by the way.

That skin-story turned out a little longer than I planned :hehe:

 

[*~aurora~*]

hi werewolf!!! I like your name. ^_^ As you can tell, I joke about lupus sometimes too. "What's lupus? You mean you don't know? Well, it starts with mood swings, aggression, excessive hair growth, and increased appetite on a monthly cycle. That period is usually followed by fatigue and a general malaise." I would say it's a whole lot closer to vampirism, personally-- no sun, sometimes a restricted diet, paleness from anemia, and you have to sleep all day? Yeah, sounds like vampirism!

Anyways, welcome and hope you find it helpful.

 

[onetay]

Werewolf,
Welcome and all are welcome here. I am sorry that you are having to deal with all this at a young age, but as I have said before if you don't know any better then what you have it is normal lol. I wish you the best with your tests and hope that you get some answers. Let us know if we can help in any way ok.

 

[Werewolf]

Thanks

@Aurora, lol you are right about the vampirism :lol: