Hello, I will try to keep this short, I hope you can offer any advice
I'm 29 and have been sick for 3 years now, I have a range of underactive thyroid/Me/CFS symptoms and terrible sleep waking hourly and recently looked into Lupus from recent blood tests (Weak positive ANA Staining). :worried:
I went from a healthy, happy, 5 times a week gym goer, brink of great career to a tired, unwell, numerous symptoms person in a few months. :sad:
I've just found out 2 weeks ago from a private endocrinologist that I have had glandular fever and CMV in last 3 years!! I also had whiplash around the time i started to get ill and have had chronic back pain ever since.
His advice was rest, exercise, wait and see! and keeping me on 50mg of levothyroxine as it made me feel better in 3 years than ever before 3 months ago. Not really great news!
However im on the decline again and never made a good recovery, just felt a bit better and in less pain.
Ive been told in the past its 'autonomic nervous system dysfunction'/ Epilepsy and been on loads of wrong drugs over the years to find out thats not whats wrong after tests.
I pick up colds/flu all the time, have had shingles twice, rashes all the time including a rare pityriosis rosea when symptoms began. Now what seems to be a rash on my cheeks and i wear heavy foundation to cover it up.
I have pain in my back all the time and have tried yoga, spinal manipulation the lot which reduces it a bit.
Im going to see a Dr S privately in a few weeks whos a virologist and treats with natural thyroid hormone which has helped people with ME aparently.
The only family history of illness is auntie with ms, recently diagnosed, sister with cushings.
I am going to try and get a referal to a rheumo this week as all my red blood cells/ white are coming back 'abnormal'
Anhyone in or has been in a similar situation?? would love to hear from you xx
I'm 29 and have been sick for 3 years now, I have a range of underactive thyroid/Me/CFS symptoms and terrible sleep waking hourly and recently looked into Lupus from recent blood tests (Weak positive ANA Staining). :worried:
I went from a healthy, happy, 5 times a week gym goer, brink of great career to a tired, unwell, numerous symptoms person in a few months. :sad:
I've just found out 2 weeks ago from a private endocrinologist that I have had glandular fever and CMV in last 3 years!! I also had whiplash around the time i started to get ill and have had chronic back pain ever since.
His advice was rest, exercise, wait and see! and keeping me on 50mg of levothyroxine as it made me feel better in 3 years than ever before 3 months ago. Not really great news!
However im on the decline again and never made a good recovery, just felt a bit better and in less pain.
Ive been told in the past its 'autonomic nervous system dysfunction'/ Epilepsy and been on loads of wrong drugs over the years to find out thats not whats wrong after tests.
I pick up colds/flu all the time, have had shingles twice, rashes all the time including a rare pityriosis rosea when symptoms began. Now what seems to be a rash on my cheeks and i wear heavy foundation to cover it up.
I have pain in my back all the time and have tried yoga, spinal manipulation the lot which reduces it a bit.
Im going to see a Dr S privately in a few weeks whos a virologist and treats with natural thyroid hormone which has helped people with ME aparently.
The only family history of illness is auntie with ms, recently diagnosed, sister with cushings.
I am going to try and get a referal to a rheumo this week as all my red blood cells/ white are coming back 'abnormal'
Anhyone in or has been in a similar situation?? would love to hear from you xx