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Hello I'm New Here

470 Views 17 Replies 9 Participants Last post by  iksyfaye
Hello Everyone,

I actually joined up a while back but kept postponing introducing myself. I had a bad lupus attack several years ago - near kidney failure, blood clots, a heart attack (from the blood clots) and suffered a lot of side effects on the medication. I think I was on 17 meds at one time!

Now I'm doing better thanks to the medication and my doctors. I've been on chemo - cytoxan (didn't help) but the Rituxan seems to have helped, particularly my kidneys. I am currently taking Cellcept, Plaquenil, Enalpril (for blood pressure for the kidneys) and Coumadin (for blood clotting). I am also on clonapin for anxiety and about to start Welbutrin for depression. I'm going through early menopause (the cytoxan destroyed my ovaries and I couldn't get the injection that protects them because it thickens the blood) and trying to find out if estrogen therapy is bad for lupus. So far I've read that it is; the lack of estrogen in my body is really driving me crazy!!! :( If anyone has personal experience with this or can direct me to the right thread I would appreciate it.

I hope to find support and information here and also provide the same. I've been through the ringer and hope that I can be helpful to others.

Take care,
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Hi and welcome to the site, You poor thing it sounds like you just need a group hugs so here is one from me to you. I have not had things as bad as you but did have my 2 children and then under went a hist. at age 22. I know that the body can do weird things and all I can tell you is to ride it out for the mean time. You might ask about some natural hormone supplements that might not be so bad for the lupus. I know there are a couple on the open market in the US. I would ask the doctor first.
There is a chat room that I hope you will join us in and share with us and feel free to ask all the questions you want. You will find a lot of people in there that you will grow very close to in a matter of minutes. I hope you start feeling better soon and that you find away to do everything you would like to do.
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