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Hello I'm New Here

470 Views 17 Replies 9 Participants Last post by  iksyfaye
Hello Everyone,

I actually joined up a while back but kept postponing introducing myself. I had a bad lupus attack several years ago - near kidney failure, blood clots, a heart attack (from the blood clots) and suffered a lot of side effects on the medication. I think I was on 17 meds at one time!

Now I'm doing better thanks to the medication and my doctors. I've been on chemo - cytoxan (didn't help) but the Rituxan seems to have helped, particularly my kidneys. I am currently taking Cellcept, Plaquenil, Enalpril (for blood pressure for the kidneys) and Coumadin (for blood clotting). I am also on clonapin for anxiety and about to start Welbutrin for depression. I'm going through early menopause (the cytoxan destroyed my ovaries and I couldn't get the injection that protects them because it thickens the blood) and trying to find out if estrogen therapy is bad for lupus. So far I've read that it is; the lack of estrogen in my body is really driving me crazy!!! :( If anyone has personal experience with this or can direct me to the right thread I would appreciate it.

I hope to find support and information here and also provide the same. I've been through the ringer and hope that I can be helpful to others.

Take care,
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Hi Cynthia, Boy you sure have been thru the wringer! We share a few things ..I am on Cellcept and Klonopin. Tried Welbutrin but could not keep it down. I have had Lupus For 11 years. In 1982, I had a hysterectomy. I did fine for years, without hormone replacement. After I was dx with SLE, I started having terrible hot flashes, being a teacher and turning red and sweating profusely was not good!! Anyway, I was on estrogen for several years up until the controversy started about the side-effects, the OBGYN took me off of them.Have you talked to an OBGYN. about your problem? Best Wishes, Rosie
Me again. Yes the estrogen did control the hot flashes,but now I have terrible night sweats from Cellcept. As they say "If it's not one thing, it"s another"! Take care, Rosie
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