Hello and a warm welcome to the boards
It is strange how we can suffer from a disease which is, after all, not so rare and yet never meet anyone who has it, or has even heard of it.
I hope you enjoy being here with us. You must have a wealth of experience to share - especially with all those docs you've been to see

You will find that people here are very kind and that it is lovely to be able to share some things with people who do implicity understand what you're going through.
bye for now, hope to speak soon,
Katharine