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Want to introduce myself... I am Sarah and after nearly 3 years a Consultant believes I have SLE... taken quite some time to get to a conclusion!... I would love to hear from anyone who can tell me about the tests to complete diagnosis and tell me that in fact i am not going mad... he first thought i was suffering from stress etc which made me feel quite pathetic!
 

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HI Sarah,

A warm welcome to the forum. I hope that your new consultant keeps on working towards getting you diagnosed and treated.

Looking forward to getting to know you better,

X C X
 

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Hello Sarah,
If you have been reading the posts you will see that many people have felt the same as you.
Have you been started on any treatment? Are your symptoms very troublesome?
Please remember to use proper sun protection, if you do a search on it you will find plenty of info here.
Welcome!
X Lola
 

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Hi Sarah and welcome :)

I think that, to answer your question, it might be helpful if we had a little more info. What tests have you already had and why does the consultant think that it may be SLE? Is the consultant a rheumatologist?

And, what symptoms etc. do you have?

I know, a lot of questions but they'll help us to know you a bit better and answer more completely.

You may also find the answer to your question in the posts at the top of the "not diagnosed yet" section on this board where you will find the criterai for SLE.

In the meantime, hugs to you and hope you enjoy being here with us and that we can help you as much as possible,

Katharine
 

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hi sarah im new here myself not diagnosed yet but tested pos for autoimmune disease and not been well for a long time. just wanted to welcome you x anna:bigsmile:
 

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Hi ya Sarah

Hope you are ok! I've not been diagnosed yet but just wanted to welcome you and to let you know that everyone at this site are fantastic.;)

Mrs M
 

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Welcome to the forum Sarah

I do hope this consultant's suggestion marks the beginning of better health for you. Diagnosis and testing are fully outlined on the Information section of this site www.thelupussite.com.

The ACR Criteria mentioned already were not meant for diagnosis but they are a good guide of features of SLE that are considered typical of lupus. The so- called Alternative Criteria are very interesting - they aren't exactly used except in tricky cases by lupus specialists as additional clues to diagnosis.
Some cases of lupus are hard to diagnose because it is a very complex disease with a huge variety of presentations and atypical cases. There are often overlap conditions too, either other autoimmune connective tissue diseases or other conditions, whether autoimmune or not.
I hope you turn out to be one of those doddle cases but you need to be aware that diagnosing can be a lengthy business and might involve other specialists too, such as a dermatologist.

Your GP should be willing to do tests such as ANA and RF as well of course as a complete blood count that could show significant abnormalities.

If you have any questions about the info just ask us.

Do you now need referral to a rheumatologist ? I suggest you ask here about lupus specialists in your area.
You can start by preparing your health history leaving nothing out except possibly mental health issues unless they are current and you are on meds.
Then make a list of more recent/current chronic health issues and a note of chronic health issues of close blood relatives - diabetes thyroid cardiac miscarriages rheumatoid arthritis kidney disease for example - all might be relevant. Also note of medicines you have been taking in recent years.

Keep in touch and let us know how you get on ! :)

All the best

Clare
 

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Hi Sarah,
just wanted to say welcome and hope you find it useful here.
It reallt has been a great space for me since i have been poorly.

Cassie :)
 
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