DLE and pain
Hey, I am still new to this group, but I saw this post and just felt, I had to respond. I was diagnosed with severe DLE in 1997, I had the butterfly rash, and lesions on my face and neck, that appeared, a couple of days after a deprovera shot (birth control) right around, my 35th birthday, of course at the time, everyone thought I was having an allergic reaction to the shot.
Almost a year later, I was finally diagnosed, through a scalp biopsy, as the lesions had spread to my head, and I worked in an office with flouresent lighting directly over my desk, I lost my job when I began to hurt, all over, and get extremely tired, I had no insurance, and didn't get very good care, but I was eventually, diagnosed with severe DLE, with Fibromaygia, chronic fatigue, and raynauds disease. Of course, due to my ignorance, and financial situation, a lot more permanant damage was done, and my head has very disfiguring, scarring, and permanant, baldness, Hope, you do not have to have this happen to you, I wish I had, had a group like this to heve helped me. Just avoid as much sun and uv lighting as you can, and you might want to ask you doc. to do the fibromaylgia point test, Lots and Lots! of luck to you!!!!! Tish