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Hi and welcome to the boards, :wavey:

I am Pam from the UK and diagnosed with SLE in 2006. I can understand how confused and overwhelmed you must feel. I know I was at the time! I'm assuming it was a Dermatologist that diagnosed you?

I don't suffer from Discoid but will help you as much as I can. There are a few members here with Discoid who I'm sure will come along and offer their support.

I've copied some information below:

How can discoid lupus erythematosus be treated?
There are two main types of treatment:
  1. Strong steroid ointments or creams often help but must be used under supervision as they can thin the skin – a side effect that has to be balanced against the risk of the patches scarring if they are under-treated. We therefore typically use stronger creams than would be used on the face for commoner conditions such as eczema.
  2. Some patients may need anti-malarial tablets - usually one called hydroxychloroquine (Plaquenil). These were originally introduced to treat malaria but were found also to have a powerful effect on inflammation and so help to control discoid lupus erythematosus. These tablets usually cause no side effects at the doses that are currently advised, but at high doses there is a small risk to the eye. You should let your doctor know if you have any visual problems; a simple baseline eye test for the sharpness of your vision is advised for all patients, but some who already have eye problems need to be assessed by an eye specialist.
  3. Other tablets sometimes help discoid lupus erythematosus but are used less often. They include dapsone and retinoids

There is nothing here for you to be worried about, the side effects are just for info. I take Plaquinel and have found a huge benefit with no side effects at all. Some find that it causes stomach upsets but this can be alleviated by taking it at a different time or after meals.

Alot of Discoid patients feel worse in the sun and the Plaquinel can help with that. Make sure you use a good sun screen too, there are some great sticky posts here about which ones to use. Some people develop joint pain, again the Plaq can help.

Please take your time to browse the site and feel free to post any questions you have. This site has a wealth of information and support and is a pretty friendly place too. :)
I look forward to getting to know you. :flowery:


Pam xxx
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