Hello! (New)

322 Views 15 Replies 5 Participants Last post by onetay, Feb 24, 2009

aitchel

Discussion Starter · Jan 16, 2009

Hi there!

I presume I go in here! I'm someone who hasn't yet had a diagnosis, but could have one in the future - my family history is such that there are two generations of lupus sufferers (SLE, discoid). My ANA was also positive (negative anti-dsDNA, however, though may change).

The rheumies are not wanting to see me straight away, but said they certainly will do at even the slightest HINT of a symptom (to which I replied that I'd feel like a nag - surely the slightest little feeling of whatever shouldn't be something I go to the doctor for?).

Anyway, that's me. Just wanting to say "hallo". Hopefully I don't come back here with any (bad) news, but it would be nice to talk to others who are going through the same thing (especially for my age - I'm in my twenties, a uni student, and am finding this whole thing of probably-having-SLE-in-the-future quite shocking).

Hi

- aitchel

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halfpintfl

· #14 · Jan 18, 2009

Hi Aitchel, and welcome to this great site, you are going to love it here. Keep a journal of all your symptoms, no matter how big or small they may sound to you. You can always re-do the list later. The main thing you need to say, first to your GP, isthat: "but it is interrupting my
way of daily living." Like the fatigue that you mentioned. Mine was so bad that it took all I could do to get out of bed. I didn't want to do anything: cook, eat, get dressed. Then Is when you tell your GP and ask him for a referral to be seen by a Rheumatologist. But have all your
paperwork done and ready. It very nice to meet you and we are all here to help you with anything. So, be well, and smile--it confusess people!!!

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