The Lupus Forum banner
1 - 5 of 5 Posts

·
Registered
Joined
·
3,033 Posts
Discussion Starter · #1 ·
Hi all
Joined thanks to recomendation from member i know through another forum,had inflamatory arthritis but treated as RA since age 18.
took self to Gp after many years asking for help no help given re arthritis.
referred to specialist who within 1 month diagnsoed me wiht Sero-negative RA.
Then over years docs have noticed i have red face and i fobbed it off as being tired or hormones.
well went for usal RA clinic appointment in August after gp did ANA test which came back postive.
my rheumatolagist said he now doubting his own diagnosis and wanted to test me for Lupus.
my father ive just found out has discoid Lupus that affects only his face,neck,scalp.
so im due to go back to specialist November this year for test results,he also testing me for postive RA and joint erosion of hands,feet.
I have Butterfly rash on both cheeks across nose,dry patches in scalp at hairline,when i go outside sun affects me and my face flares up bright red,very inflammed hot.
also certain lights affect me,stress etc.
ive had my methotrexate reduced by 5 mg due to several side effects and folci acid increased which should reduce my swollen red mouth,mouth ulcers.
which ive had since joint problems started.

have fatigue,joint pains,syptoms of sero negative RA.

i married with 2 cats adorable.
just moved last year to biggger flat and recently had occupational therapy home assesment and will be hopefully geting alot adaptions.

thats enough i think .
countrylass:blush:
 

·
Registered
Joined
·
7,800 Posts
Hello Countrylass and :welcome:

It sounds like you have a good doc who takes you seriously and is at least willing to question his own diagnosis and to probe further when he's not sure.

I hope the methotrexate reduction helps with the side effects.

Feel free to ask any questions you may have, there are plenty of experienced members here willing to share their experience and give support when needed :)

Bye for now,
Katharine
 

·
Registered
Joined
·
4,968 Posts
Hi there and welcome to the site.

I am glad you listened to your friend and joined here.

I love this place as it has been a god send to me.

I am hopeful you like it as much and find this group of people supportive, knowledgeable and very understanding.

This is my home away from home and hope it becomes yours too.

Join us in the chat room sometime.:wink2:
 

·
Premium Member
Joined
·
7,567 Posts
Hi Country lass and welcome to the site!! I woulod love to join you in chat sometime!!! Please feel fre to PM me.

Deb x
 

·
Registered
Joined
·
3,033 Posts
Discussion Starter · #5 ·
hi

Hi ive pm u
replied to other reply thank u for this help.
countrylass
 
1 - 5 of 5 Posts
This is an older thread, you may not receive a response, and could be reviving an old thread. Please consider creating a new thread.
Top