Hi
I am new to this sort of thing and some what down at the moment so forgive me if this is in the wrong place.
I have been ill for the past 6 years when the small joints in my feet and hands swelled up so bad overnight I could not move. I was diagnosed firstly with Raynauds then Scleroderma ( I really dont think I have the symtoms of Scleroderma) then mixed connective tissue disorder and inflamatory arthritis. I attend a lupus clinic and have a lupus specialist but dont ever seem to have the markers in my blood. the joints in my hands are so inflamed just now I look like i have mutant hands but the imflamation markers say they are fine!*?!
I am so tired and weary now of it all - I have been signed off sick for the past 4 weeks as I am so down and sore. I feel like a walking pharmacy. I inject MTX, on Plaxinal - cant spell that but its the malaria medicine, nephedipine, solpadol, tramadol,a new anti infam.,and have iloprost infusions ever month. Just had steriod injection in my butt three days ago but has only helped a bit - one hand ok, just the normal aching, the other still looks and feels like John Merrick. But still no one can tell me what is wrong.
I also have fibromyalga ( please excuse my spellings).
I get a rash on my neck not my face.
I am whinging now - sorry
I have read this board for a wee while and it has made me feel like I am not alone.
Cheers
I am new to this sort of thing and some what down at the moment so forgive me if this is in the wrong place.
I have been ill for the past 6 years when the small joints in my feet and hands swelled up so bad overnight I could not move. I was diagnosed firstly with Raynauds then Scleroderma ( I really dont think I have the symtoms of Scleroderma) then mixed connective tissue disorder and inflamatory arthritis. I attend a lupus clinic and have a lupus specialist but dont ever seem to have the markers in my blood. the joints in my hands are so inflamed just now I look like i have mutant hands but the imflamation markers say they are fine!*?!
I am so tired and weary now of it all - I have been signed off sick for the past 4 weeks as I am so down and sore. I feel like a walking pharmacy. I inject MTX, on Plaxinal - cant spell that but its the malaria medicine, nephedipine, solpadol, tramadol,a new anti infam.,and have iloprost infusions ever month. Just had steriod injection in my butt three days ago but has only helped a bit - one hand ok, just the normal aching, the other still looks and feels like John Merrick. But still no one can tell me what is wrong.
I also have fibromyalga ( please excuse my spellings).
I get a rash on my neck not my face.
I am whinging now - sorry
I have read this board for a wee while and it has made me feel like I am not alone.
Cheers