I have been a member for a little while. Just not introduced myself. I think that a I made one post when I was having some trouble a when I first joined. I have been struggling with lupus for a while. Been in a little bit of denial, thinking that there had to be some quick fix to this, but see now that there is not but there is hope for remission. It seems like just when I get to feeling better the doctors say, OK, lets weene you off of your prednisone. I take a ton of other meds as well but the prednisone is the one drug that seems to help and when I taper below 10 mg everything seems to break loose? I absolutely hate the side affects of prednisone. I have gained weight, have a fat pad on the back of my neck and on the sides of my neck by my collar bone. This whole thing is really beginning to make me mad. I have been struggling for 3 years now and I am become very frustrated with the cycle that I seem to be in. I do not seem to go more than 2-3 months without flares. Lately there have been times that I have looked at my meds and say to myself, "what is the point they don't seem to work very well?". I had lost 65 pounds and walked 4 miles everyday before I got sick. I had a life and cannot figure out what caused this, how it happened, what did I do? I see from this site that I am not the only one out there with this problem which is really sad but gives me a little strength in knowing I am not alone or crazy.