Hello to everyone

742 Views 19 Replies 15 Participants Last post by arwen, Oct 20, 2008

sharon_38

Discussion Starter · Oct 15, 2008

Hi

I wanted to say a big 'hello' to everyone on this site.. I have been reading some of the posts and have already learned more and felt more support than I did before, so thank you all already!

I have been diagnosed in drips and drabs over the last few years.. sort of keep adding things to my list every time I see rheumy

So far I have something that floats between Lupus sle and rheumatoid arthritis.. hypothyroid, fibromyalgia, migraines (sticky blood type?) uctd and some other things that have appeared then dissapeared over the courses of treatments i've been trying.

By the way, I'm bursting with questions but will I look forward to reading more here and maybe I can contribute to some discussions when i get the hang of things

take care

Sharon

1 - 20 of 20 Posts

Julie Paynter

· #2 · Oct 15, 2008

Hi Sharon

I've only been here 24 hours and already so many questions have been answered and i feel a lot more a ease.
This site is amazing and so helpful and the poeple are fab.
There's other people out there just like you and me.

See you on the forums.

Julie x :hehe:

Viridian

· #3 · Oct 15, 2008

sharon_38;523290 said:
Hi

I wanted to say a big 'hello' to everyone on this site.. I have been reading some of the posts and have already learned more and felt more support than I did before, so thank you all already!

Just wanted to say :welcome: and I'm sure you'll find all the support and advice you need here!

Katharine

· #4 · Oct 15, 2008

Hello Sharon and welcome

I hope you enjoy being here and find this site as supportive and full of useful information as I have.

speak soon,
Katharine

Julie Paynter

· #5 · Oct 15, 2008

we're all init together.

and together we'll be fine.

Mrs M

· #6 · Oct 15, 2008

Hello there Sharon

Hope you're not too bad at the moment

I've been coming here for several months and the people around here are simply marvellous.

I'm not diagnosed yet but ongoing with appointments.

Sure we'll speak again soon. Take care

Mrs M

sharon_38

Discussion Starter · #7 · Oct 15, 2008

feeling very welcome

hi all

Really appreciate all your kind words of welcome and support - wow such a quick response too!

Sharon

lesgor

· #8 · Oct 15, 2008

Hi and welcome i too have recently joined the site and found it amazing and very informative. lots of support from lovely people who are all here to help and support one another, love, lesley xx

squeaky

· #9 · Oct 15, 2008

greetings

Hi there Sharon
Just like to add my welcome to you, along with all the other great people on this site.
Hope you are well at the moment
Best wishes
Sue:thumbs::thumbs:

cattibby

· #10 · Oct 15, 2008

hello

Hi Sharon,

Im glad you found this site as i did a few weeks back. Welcome to you, shame you are having to deal with sle, i know im finding it tough but this site is fantastic. Everyone is so kind and supportive and some are fantastically knowledagable about it all.

Take Care

Jane

Zoi

· #11 · Oct 15, 2008

Hey there Sharon and :welcome: to the forum!

Are you on any meds for your sle, ra and sticky blood?? How do your lupus, sticky blood and ra affect you?

Hope you find lots of useful information and advice here as well as answers to your questions and lots of friends! :thumbs:

:flowery:

Zoi

onetay

· #12 · Oct 16, 2008

Hi Sharon,
I found this site and the people in here more helpful than most of the doctors. I am glad that you found this site and look forward to chatting with you in the chat room soon.
Tammy(onetay)

alisiajo

· #13 · Oct 16, 2008

Hi Sharon, I wanted to welcome you and wish you luck! I have already found a lot of usefull information. And a reason to a symptom i've been having and just been dealing with.

sharon_38

Discussion Starter · #14 · Oct 16, 2008

Zoi;523360 said:
Hey there Sharon and :welcome: to the forum!

Are you on any meds for your sle, ra and sticky blood?? How do your lupus, sticky blood and ra affect you?

Hope you find lots of useful information and advice here as well as answers to your questions and lots of friends! :thumbs:

:flowery:

Zoi

Hi Zoi

Thank you for your message and currently I'm on methotrexate/folic acid + steroid jabs which is really helping to dampen things down a bit..and just baby asprin for sticky blood.. I have basilar migraines which I use rizatriptan for and thyroxine for low thyroid.

In the past I did try plaquenil, anti-seizure meds, anti-depressants, volterol and every mixture of 'over the counter medicines'! even tried sleeping tablets as I just thought if i could shake the tiredness i would be 'fine' -

My symptoms seem to mainly be joint/muscle pain, migraines and headaches daily..low energy/weakness. Oh yes and lots of odd things which until I came here and started reading I dismissed as 'just me'.. I am due to go to rheumy again next week , but this time I'm going with a list!

Anyway , thanks again for support

Take care

Sharon xx

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arwen

· #15 · Oct 16, 2008

hi nice to hear from you, hope ur coping ok

Clare.T

· #16 · Oct 17, 2008

Welcome Sharon

I'm sorry you have so much to contend with.
You might find that Plaquenil would help and there's no reason it shouldn't be taken with Methotrexate. It is a very important disease modifying medicine.
Among other advantages, it slightly thins the blood and helps relieve fatigue.
Make sure you aren't suffering from any form of anemia this goes undetected surprisingly often and is sometimes very easily corrected.

I hope you will find the support and information available here very helpful.

All the best
Clare

sharon_38

Discussion Starter · #17 · Oct 17, 2008

Hi Clare.. and thank you for your message

I will mention your points to rheumy next week and yes will get iron checked too

Many Thanks

Sharon x

LolaLola

· #18 · Oct 17, 2008

Dear Sharon,
I don't think we have said Hello yet. If we have please forgive me I get muddled spells but I would rather welcome you twice than not at all.
x Lola
PS I used to live in West Sussex, Near Chichester.

Jesse88

· #19 · Oct 17, 2008

Hello from another newbie. You'll find it's great to "talk" to others who totally "get it" when discussing meds, symptoms, etc. What did people do before the internet? It must have been so much harder.

arwen

· #20 · Oct 20, 2008

sharon_38;523307 said:
hi all

Really appreciate all your kind words of welcome and support - wow such a quick response too!

Sharon

hi sharon, glad ur finnding the site useful as i did, hope ur not to bad at present

1 - 20 of 20 Posts

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