Hello my husband has has SLE, Polymyositis and dermatamyositis for 7 years he had had no flare ups in 4 years but just beofre xmas he got really ill. His muscles are causing real bad pain, and his fingers have all gone black and blue the consultant thinks there may be a chance that he may loose 3 of them. They have increased his mycophenilate and tenzipine and his calzort ( Steroids) but he seems to be getting worse rather than better. We saw his gp today and she seems to think he may have to go into hospital tomorrow. I just feel like I am in a waiting game at the minute. Has any one else had these syptoms and is there light at the end of the tunnel.. I feel so alone as most people dont even know what sle is? Thanks for listening Penny