I call myself Princess...
My journey with Lupus has been a very familiar one. 1992 I test F/P for RPR, got the shots thought everything was fine. In 1993 I became pregnant, had a series of blood work and I was told I had a "funny antibody" and if it was to react they would treat it with baby asprin. Never reacted. Lived a normal life and in 1998 had my second child and was in a car accident. I had never felt so much pain in my life. I couldn't get out of bed:worried: I went back to the doc and he gave me a scare....I thought I had AIDS the way he reacted. After threating his licenses I choose another doctor who diagnosed me with RA....He passed away so I went to another doc who said I had Fibromalysia (SP?). My insurance changed and doc changed and finally was diagnosed with Lupus. By this time I have the imfamous rash, joint pains, fatigue. He put me on Plaqenil and Prednisone. It really didn't work. I wanted something to help me walk. I changed my docs again. This is when I started becoming educated about my diease.
I have went through a body change (prednisone), hair loss, limp sometimes, tired all the time and ended up pregnant again. I had him early (7 months) 2007 baby is a year almost 2.
I spend a lot of time being scared, tired, depressed, in pain. The past couple of months has been okay... not much joint pains but rash on my face is pretty bad and MY HAIR is gone on the sides. I think I am getting ready to go through another flare. :worried:
Any suggestion on how to make my life eaiser would be great...I know the hair this is vanity but it is important to me. I feel so unattractive sometimes. I have no energy. I hate the meds but have to take them. I hate the pain but can't do anything about it....:sad:
My journey with Lupus has been a very familiar one. 1992 I test F/P for RPR, got the shots thought everything was fine. In 1993 I became pregnant, had a series of blood work and I was told I had a "funny antibody" and if it was to react they would treat it with baby asprin. Never reacted. Lived a normal life and in 1998 had my second child and was in a car accident. I had never felt so much pain in my life. I couldn't get out of bed:worried: I went back to the doc and he gave me a scare....I thought I had AIDS the way he reacted. After threating his licenses I choose another doctor who diagnosed me with RA....He passed away so I went to another doc who said I had Fibromalysia (SP?). My insurance changed and doc changed and finally was diagnosed with Lupus. By this time I have the imfamous rash, joint pains, fatigue. He put me on Plaqenil and Prednisone. It really didn't work. I wanted something to help me walk. I changed my docs again. This is when I started becoming educated about my diease.
I have went through a body change (prednisone), hair loss, limp sometimes, tired all the time and ended up pregnant again. I had him early (7 months) 2007 baby is a year almost 2.
I spend a lot of time being scared, tired, depressed, in pain. The past couple of months has been okay... not much joint pains but rash on my face is pretty bad and MY HAIR is gone on the sides. I think I am getting ready to go through another flare. :worried:
Any suggestion on how to make my life eaiser would be great...I know the hair this is vanity but it is important to me. I feel so unattractive sometimes. I have no energy. I hate the meds but have to take them. I hate the pain but can't do anything about it....:sad: