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· Registered
482 Posts
Discussion Starter · #1 ·
Hello there.

I know I have not been around much at all but had a few minutes and wanted to come and do some catching up. Got to respond to some of my old buddies from here. Hope I didn't miss too much.

Welcome to all the newcomers !

Hmmm where to start..... I dropped a dose of Immuran, saw my rhemo, he knows how I am with meds and didn't give me lip about it, but said do not get off anything further. I am back to the normal dose of 100 mg a day. He wants to keep things stable.

My urine once again came back with protein, blood, mucos in it. Hmmm. Last time I thought a UTI, but now 3 months later the exact same thing. I think it is time for me to see either a urologist or a kidney specialist to check things out. I never ever had protein in my urine. It is 1+ so not a large amount, but enough there that it is not just a trace either.

I am still working and glad to have my job despite the economy. Things are slow at my work too so the worry is there for me. We just bought a cabin in the White Mountains, NH and we have been looking for the past two years. I was skeptical to do it, what if I get worse, what if I can't work, what if, what if. Well, since most of my posts say don't get into the "what if's" I took my own advice and went for it. I love it. It needs so much work but it is almost 6 acres of land and has the most beautiful clean brook wtih all rocks of all sizes on it. The mountains. The air, the water, the serine. The work has sent me in a flare it seems though.

My son is doing better and in treatment at the moment. He is very nice, polite and positive. He will return home in Oct. and I truly hope that things improve in his life and that it all works out. Such good news though right? For those that followed my story.

I try to listen to my body and rest when I need it. It is hard. But all in all, I accept that things can be worse, so try to grasp what I have in today and try to find something in each day to laugh about, smile or enjoy.

I lost yet another friend to suicide. A distant friend from long ago. I treasure every second of life and I wish I could pass that feeling on to whoever needs it.

But all in all, I can't complain. Symptoms come they go. Some bad, some not so bad. Fevers off and then on. Lupus. I think it should be called the Neverending Disease.

Hope all of you are well and I will keep you all in my prayers as I always do.

Miss you !

· Premium Member
10,193 Posts

I have wondering how you are doing. I am happy to see that things are starting to settle down in your life.

Your cabin sounds wonderful.:thumbs: It sounds so peaceful and relaxing.

I is good to read that your son is doing better. I hope he continues to improve for you and your family.

Take care of yourself,

· Registered
2,872 Posts
Thanks for the update Paula and it's good to hear all is going so well especially how much better your son is doing. What a hellish time that was for you all. Life is never perfect and you seem to have got the secret of dealing with its ups and downs tragedies and joys. I envy you your retreat - it sounds quite wonderful
All the best
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