Hi Everyone
I am new to the site and was given my positive Lupus result last Friday. Having read through a couple of posts - I can say that I can really relate:hehe:.
Ask anyone if they are tired after a full working day of 7-5 and they all say yes, so I never figured that I was any more tired than anyone else! I never knew I was suffering from Lupus, and people get tired of hearing that you are always sick or aching or have a headache (I suffer from migraines). People start thinking you are avoiding them or making yourself sick (like I was getting people with flu to sneeze on me
). So I guess I learned to "cover up" most of the things that I was going through. That is why is it nice to finally have a name for everything!
I must admit that now - telling people has been very emotional. Perhaps cause I was so good at "covering up". most of my friends and families reactions have been rather underwhelming. Like Lupus is just another disease on the list of all the colds and flu's that I get. So trying to strike a balance of making them understand that this is a chronic disease - without scaring the pants off them has been a tricky thing! I find myself taking all of them and their feelings into account at a time when my feelings are a roller-coster ride.
Of course now that I have gotten through actually telling my family - now they all have opinions on what I should and shouldn't be doing
I am new to the site and was given my positive Lupus result last Friday. Having read through a couple of posts - I can say that I can really relate:hehe:.
Ask anyone if they are tired after a full working day of 7-5 and they all say yes, so I never figured that I was any more tired than anyone else! I never knew I was suffering from Lupus, and people get tired of hearing that you are always sick or aching or have a headache (I suffer from migraines). People start thinking you are avoiding them or making yourself sick (like I was getting people with flu to sneeze on me
). So I guess I learned to "cover up" most of the things that I was going through. That is why is it nice to finally have a name for everything! I must admit that now - telling people has been very emotional. Perhaps cause I was so good at "covering up". most of my friends and families reactions have been rather underwhelming. Like Lupus is just another disease on the list of all the colds and flu's that I get. So trying to strike a balance of making them understand that this is a chronic disease - without scaring the pants off them has been a tricky thing! I find myself taking all of them and their feelings into account at a time when my feelings are a roller-coster ride.
Of course now that I have gotten through actually telling my family - now they all have opinions on what I should and shouldn't be doing
