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Discussion Starter · #1 ·
Hi Everyone

I am new to the site and was given my positive Lupus result last Friday. Having read through a couple of posts - I can say that I can really relate:hehe:.

Ask anyone if they are tired after a full working day of 7-5 and they all say yes, so I never figured that I was any more tired than anyone else! I never knew I was suffering from Lupus, and people get tired of hearing that you are always sick or aching or have a headache (I suffer from migraines). People start thinking you are avoiding them or making yourself sick (like I was getting people with flu to sneeze on me :rolleyes:). So I guess I learned to "cover up" most of the things that I was going through. That is why is it nice to finally have a name for everything!

I must admit that now - telling people has been very emotional. Perhaps cause I was so good at "covering up". most of my friends and families reactions have been rather underwhelming. Like Lupus is just another disease on the list of all the colds and flu's that I get. So trying to strike a balance of making them understand that this is a chronic disease - without scaring the pants off them has been a tricky thing! I find myself taking all of them and their feelings into account at a time when my feelings are a roller-coster ride.

Of course now that I have gotten through actually telling my family - now they all have opinions on what I should and shouldn't be doing :rolleyes:
 

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Hello Cherryred, This is a hard time for you despite being glad to have a name for what you feel.
Do you have good support from your GP and Consultant?
Learn for yourself what works for you, you can always listen nicely to all advice then fling it out of your head if it is not helpful to you.
Come here often, we all need each other.
x Lola
 

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Discussion Starter · #3 ·
Thanks LolaLola

I am going to see the doctor at the end of the month to go over my results and he will no doubt refer me to a specialist. My general GP also suffers from Lupus, so I am lucky in that sense, that she will understand everything I am going through.
 

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Hello there and welcome to the site.

Many friendly people here !

Just by reading the posts, you will find many helpful things.

I am sorry about your diagnosis, but glad that you can finally start the right treatment and start to feel better soon.

You are right, many people do not understand a thing about Lupus. I find some think I am deadly ill and others think it is like having a cold.

I keep to myself about my symptoms now and just deal with them myself and my hubby and my sis and that is about it. The others just get minor details. And of course - here !

Nice to meet you.
 

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Hi Cherryred:)

:welcome: to this fantastic site.

Sorry to hear of your diagnosis but you will find this site sooooo helpful. The people around here are always willing to help, offer their knowledge or give a gentle hug if needed.:)

Hope you're well at the moment.

Take Care
Mrs M
 

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welcome

Hi and welcome to this site Cherryred. It is good you have found this site as it is so good to have somewhere to go and have a whinge when you dont feel able to talk to colleages and Family about how you are dealing with it.
As the others have said it is a very welcoming place and there is usually at least one person who has been there/ done that which can be very helpful. Its not all doom and gloom however, its a place to come for some light hearted stuff too.
Hopefully once you get started on some meds you will start to feel a bit better physically also. Take care.
Sue
 

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Oh yes and I find there is a difference in the tired after work thing. There are days when the afternoon comes and I wish I were home and dream of my comfortable bed. By the time the end of the day comes, sometimes my family sees me walk in, kiss them, hello, bla bla goodnight. There are times when hubby brings supper to bed. I think others tiredness after works is just going home and being tired but being able to complete the night of chores and cook dinner and clean and whatever else they do. But they yawn during it. We just can't do it.
 

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Discussion Starter · #9 ·
All I can say about being tired after work - is thank goodness my hubby cooks dinner every night :rotfl:
 
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