Hi Sue,
Welcome to the forum. You are correct, Lupus does not get the recognition that other diseases get even when it is more prevalent. Each of us in our own way has to spread the word and fight for medical advances.
I hope both you and your daughter will find the site helpful. The members here are more than willing to share their experience and knowledge. Don't forget to visit the chat room. It is a great way to meet others dealing with the same problems you are facing. We do have some mother's with children that have Lupus that drop into chat from time to time.
Take care,
Lazylegs