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Discussion Starter · #1 ·

my name is Jasmine - I was diagnosed with lupus (SLE) this past september, but still haven't been able to settle down this initial "flare". I am taking prednisone, plaquenil, and I'm also participating in a clinical trial for a new medication. My life has changed dramatically since being diagnosed, and none of these treatments have helped me at all - in fact I have gotten worse. My doctor says that I also have a myopathy or some type of muscle disease, I have extremely high levels of CK in my blood, and cant seem to control it. I have just found this lupus site and hope to get some advice as well as offer what little knowledge I have.

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