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2 Posts
Hi everyone. I posted here once back in 2006, but never introduced myself, and haven't posted anything since... so here I am again.
My name is Sandy, I was diagnosed with SLE in 2006 among a plethora of other autoimmune diseases which the list has only grown since then. I have two super-amazing children. My daughter is 5 and in Kindergarten this year, and my son is 3 1/2.
I have a very severe case of SLE, and have unfortunately been pretty unresponsive to all the "regular" treatments. I average about 2 days a month admitted in the hospital for flares or complications from my kidneys or neurological stuff. I'm currently doing Rituxan infusions, on CellCept, a high dose of prednisone (which I've been on long term), and a basket full of other drugs. I have a great rheumy though, and he is determined to get this under control somehow!
My DH & I will be celebrating our 6 year wedding anniversary next month- and I have to say he has truly been my rock throughout all of this. He gets all my meds together in the mornings and evenings, and is always there at the hospital and doctor appointments. He takes care of our house and kids all by himself sometimes in addition to having to take care of me, AND he works full time with a demanding job in law enforcement. I don't know how I would have made it through the past 3 1/2 years of being so sick without him.
Well, I feel like I've written a novel. I'm pretty involved with my local LFA chapter, and raise $$ for the Walk For Lupus Now event every year. This year I made a little video kind of like a testimony to let people know how lupus has changed my life. If you are interested in watching it you can go to youtube and type "LovelyLupie83 Living With Lupus" in the search box and it is there (I'd link it, but I can't until I've posted 15 times here!!).
Hope you all had a wonderful weekend!
My name is Sandy, I was diagnosed with SLE in 2006 among a plethora of other autoimmune diseases which the list has only grown since then. I have two super-amazing children. My daughter is 5 and in Kindergarten this year, and my son is 3 1/2.
I have a very severe case of SLE, and have unfortunately been pretty unresponsive to all the "regular" treatments. I average about 2 days a month admitted in the hospital for flares or complications from my kidneys or neurological stuff. I'm currently doing Rituxan infusions, on CellCept, a high dose of prednisone (which I've been on long term), and a basket full of other drugs. I have a great rheumy though, and he is determined to get this under control somehow!
My DH & I will be celebrating our 6 year wedding anniversary next month- and I have to say he has truly been my rock throughout all of this. He gets all my meds together in the mornings and evenings, and is always there at the hospital and doctor appointments. He takes care of our house and kids all by himself sometimes in addition to having to take care of me, AND he works full time with a demanding job in law enforcement. I don't know how I would have made it through the past 3 1/2 years of being so sick without him.
Well, I feel like I've written a novel. I'm pretty involved with my local LFA chapter, and raise $$ for the Walk For Lupus Now event every year. This year I made a little video kind of like a testimony to let people know how lupus has changed my life. If you are interested in watching it you can go to youtube and type "LovelyLupie83 Living With Lupus" in the search box and it is there (I'd link it, but I can't until I've posted 15 times here!!).
Hope you all had a wonderful weekend!
but your husband sounds lovely (almost as lovely as mine :wink2
