Hello everybody,
I had a mri without contrast last month and it indicated that I had an uncommon form of CNS lupus vascultitis. I was unable to do the one with contrast because of low kidney function. My neru said that it didn't look that serious but was hard to give me more explanation because no contrast done. Can anyone explain what cns lupus vascultitis is and its symptoms. If you have this, can you please share your stories and offer advice.
Lately, I have been feeling that I have been brain damaged - can't concentrate on anything ( even watching tv); trouble expressing myself (having a hard time writing this); barely talk ( I used to be one who talked a lot and have opioions (sp?) on everything; I run out energy when I talk for a long time. My tongue feels agrevated in my mouth sometimes I find myself doing strange things with my mouth such a bitting my teeth and switching my cheeks (am I crazy, retarded, or strssed). Simple tasks such as perparing food is diffucult because I have to do it slow. I've also been suffering from insumania (sp?) but slept better last night after buying the herb form of valium. I know in my heart that I'm not the same person and and that something is affecting my brain. This has caused depression and anxiety. My main concern is if this in fact cns lupus vascultitis will it go away or will it be permenant (sp?). Also, how does one distinguish symptoms of cns lupus vasculitis from a stroke?
I'm 31 and had lupus since 12 years old (only butterfly rash) that went away at 19. I then developed systemic lupus at 21. For the past nine years, my only issues were skin, mouth sores, finger problems,protein in urine. Last year was the best and it seemed that I was going into remission. Then, the first day of this year, I had a flare and from there everything has been going downhill. I started having high blood pressure and then bam my kindey function goes down. After my first cytoxin and sol medrol, my blood counts got so low that I had a blood transfusion. I had some success on the following treatments but three weeks ago found out I was in low stage 4. My last test however was good. I'm in stage 2 but who knows how long that will last. I'm very fustrated. I've never faced anything this serious in my life. I have no friends or extended family (live in other states). I'm on disability. I can't talk to my parents. They are having trouble in their marriage and have massive bills. I just started telling my father yesterday but I don't think he really understands and just keep telling me to pray. I have started to get into my faith and its the only thing that has kept me going. If anybody is christian, please put out some prayers for me.
Candice
I had a mri without contrast last month and it indicated that I had an uncommon form of CNS lupus vascultitis. I was unable to do the one with contrast because of low kidney function. My neru said that it didn't look that serious but was hard to give me more explanation because no contrast done. Can anyone explain what cns lupus vascultitis is and its symptoms. If you have this, can you please share your stories and offer advice.
Lately, I have been feeling that I have been brain damaged - can't concentrate on anything ( even watching tv); trouble expressing myself (having a hard time writing this); barely talk ( I used to be one who talked a lot and have opioions (sp?) on everything; I run out energy when I talk for a long time. My tongue feels agrevated in my mouth sometimes I find myself doing strange things with my mouth such a bitting my teeth and switching my cheeks (am I crazy, retarded, or strssed). Simple tasks such as perparing food is diffucult because I have to do it slow. I've also been suffering from insumania (sp?) but slept better last night after buying the herb form of valium. I know in my heart that I'm not the same person and and that something is affecting my brain. This has caused depression and anxiety. My main concern is if this in fact cns lupus vascultitis will it go away or will it be permenant (sp?). Also, how does one distinguish symptoms of cns lupus vasculitis from a stroke?
I'm 31 and had lupus since 12 years old (only butterfly rash) that went away at 19. I then developed systemic lupus at 21. For the past nine years, my only issues were skin, mouth sores, finger problems,protein in urine. Last year was the best and it seemed that I was going into remission. Then, the first day of this year, I had a flare and from there everything has been going downhill. I started having high blood pressure and then bam my kindey function goes down. After my first cytoxin and sol medrol, my blood counts got so low that I had a blood transfusion. I had some success on the following treatments but three weeks ago found out I was in low stage 4. My last test however was good. I'm in stage 2 but who knows how long that will last. I'm very fustrated. I've never faced anything this serious in my life. I have no friends or extended family (live in other states). I'm on disability. I can't talk to my parents. They are having trouble in their marriage and have massive bills. I just started telling my father yesterday but I don't think he really understands and just keep telling me to pray. I have started to get into my faith and its the only thing that has kept me going. If anybody is christian, please put out some prayers for me.
Candice
