Hi there
I hope I am just being paranoid but I am beginning to worry that my daughter has lupus. I have SLE and I believe my mother has too (she has ulcers, sjorgens, osteoarthritis and had acute nephritis as a child but refuses to accept she might have lupus). My daughter, just 2, was a very hypermobile baby and has been diagnosed with Hypermobility Syndrome, but after a year of physio she is much better and is an active child who is quite strong in her muscles. However, she still gets utterly exhausted after physical exercise, has to be paced really carefully or for instance if she does too much in the morning will cry all afternoon on the sofa after her nap. Her physio and her doctor are now saying that the level of tiredness she experiences can't be explained just by joint hypermobility. She has been seen by a rheumatologist who said it was hard to tell if she had any joint inflammation but seemed ok. She is being referred to a cardiologist for a recently noticed heart murmur. She eats well, sleeps well and is advanced in language and fine motor skills, and is catching up in gross motor skills. She gets mouth ulcers.
I recently started to get scared that she had kidney problems as she suddenly had a period of accidents, and her tummy was huge and her belly button stuck out but it seems ok now, and I am aware that I look for things too much. The physio suggested that we go to the GP to rule out things like thyroid and anaemia, but are there any tests that could be done to check whether she has lupus at this age? Would it be worthwhile doing them? Am I just freaking out unnecessarily...?
Thank you,
xHatty
I hope I am just being paranoid but I am beginning to worry that my daughter has lupus. I have SLE and I believe my mother has too (she has ulcers, sjorgens, osteoarthritis and had acute nephritis as a child but refuses to accept she might have lupus). My daughter, just 2, was a very hypermobile baby and has been diagnosed with Hypermobility Syndrome, but after a year of physio she is much better and is an active child who is quite strong in her muscles. However, she still gets utterly exhausted after physical exercise, has to be paced really carefully or for instance if she does too much in the morning will cry all afternoon on the sofa after her nap. Her physio and her doctor are now saying that the level of tiredness she experiences can't be explained just by joint hypermobility. She has been seen by a rheumatologist who said it was hard to tell if she had any joint inflammation but seemed ok. She is being referred to a cardiologist for a recently noticed heart murmur. She eats well, sleeps well and is advanced in language and fine motor skills, and is catching up in gross motor skills. She gets mouth ulcers.
I recently started to get scared that she had kidney problems as she suddenly had a period of accidents, and her tummy was huge and her belly button stuck out but it seems ok now, and I am aware that I look for things too much. The physio suggested that we go to the GP to rule out things like thyroid and anaemia, but are there any tests that could be done to check whether she has lupus at this age? Would it be worthwhile doing them? Am I just freaking out unnecessarily...?
Thank you,
xHatty
