[candi77]

Hi,

i posted a couple days ago under topic "Scared Kidneys are falling". Well they are still falling. It has gone from 1.26 to 1.86 in two weeks and now 2.02 in one week. This appears to be an acute failure. My gfr is 29 on the lab slip but on the national kidney foundation site it is 37 when taking my race and gender in consideration. Can someon explain this to me. They are both low numbers though. My kidney doctor is not in office and it costs $30 to page an oncall doctor. I talked to my rumy and she wants me to come in on Monday for cytoxan and sol medrol. I get the impression that she has given up on me because she kept asking me about dialysis. I really don't believe my kidneys are this bad but I don't know what causing this. I don't believe my doctors are that helpful. I'm scared because I don't believe I have much time left. I appreciate any advice.

Candice

 

[Maia]

Do you have protein loss and blood detected in your U/As? Have you had a 24 hour urinalysis done? Have you had a kidney biopsy done? These are all normally answered with "yes" if there is suspicion that lupus is causing kidney trouble, and are usually done before cytoxan treatment.

What medications are you on right now?

It's impossible really for us to advise you, and I'm sure your nephrologist will be best able to answer your questions hopefully on Monday. If your worry levels increase too much over the weekend, then I think it would be best to talk to the oncall doctor as it would likely be worth $30 to get some answers sooner rather than later.

I would be worried too in your shoes... I'm sorry you have to go through this and worse yet get that information on a Friday having to wait a weekend to talk to your doctor. (((hugs)))

Take care and try to do something fun and/or relaxing or distracting if you can. Maybe go to a good movie, or rent several and stay home. Read a great book... etc.

 

[Lily]

((((((((((Candice)))))))))))))

I think you really have to try and get a hold of your kidney doctor and speak to him about this and also about the drug you are on that caused your GFR to go down and then once you went off it the reading came back up. Another round of Cytoxan may be needed but you really have to feel comfortable with this decision and make sure it's not just because of that drug. The way to tell that would be a kidney biopsy as Maia mentioned and usually they would not put someone on Cytoxan until they had established the level of kidney involvement due to Lupus via biopsy.

hugs to you, you are in a dilemna until you speak to him. It seems you need one person running the show here, someone to take charge, not bouncing you around :hugbetter:

love
Lily