I am new to all this - I need some advice & support. My 13yo has been sick for about 6 mos.
Oct - Hives all over swollen hands, feet, allergist tests all negative
Dec - Chest pain dx costochondritis, chronic headaches, joint pain.
Jan - #1 Rhemy says fibromyalgia after 30 min.interview, orders bone scan, ultrasound adominal. Ovarian Cyst 5.5 cm, finally ruptured, chronic headache, chest pain still. Blood Work normal.
Feb - swelling in knee & pain, chronic headache, chest pain, swollen feet
Mar - knee pain swollen, red then purple, foot pain, chronic headache, chest pain Slightly elevated ESR, liver enyzmes elevated slightly. New rhemy dx connective tissue disease on 2nd visit. Plaquenil, relafan, cymbalta.
My daughter has gotten worse since last visit. Cannot walk or put weight on feet due to pain.
We go to dr today and he pulls me aside and says she should be able to walk.
I know my daughter I do not believe this is in her head - she will walk again right now she is in too much pain. So he tells her she can walk and she will not leave the exam room unless she walks out. (I am encouraging her to walk even though my brain knows better) She starts crying and I am completely confused - I know my daughter better than this dr that has spent less than 1 hour with her. He left the room and then I left her crying on the exam table (boy am I stupid!) I go out to the waiting room and call her therapist and tell her what happened and she told me to leave that office and don't ever go back. I am soo confused. I thought we were working on a plan to help make her better now that this doc has done a 360 I don't know where to turn.
Oct - Hives all over swollen hands, feet, allergist tests all negative
Dec - Chest pain dx costochondritis, chronic headaches, joint pain.
Jan - #1 Rhemy says fibromyalgia after 30 min.interview, orders bone scan, ultrasound adominal. Ovarian Cyst 5.5 cm, finally ruptured, chronic headache, chest pain still. Blood Work normal.
Feb - swelling in knee & pain, chronic headache, chest pain, swollen feet
Mar - knee pain swollen, red then purple, foot pain, chronic headache, chest pain Slightly elevated ESR, liver enyzmes elevated slightly. New rhemy dx connective tissue disease on 2nd visit. Plaquenil, relafan, cymbalta.
My daughter has gotten worse since last visit. Cannot walk or put weight on feet due to pain.
We go to dr today and he pulls me aside and says she should be able to walk.
I know my daughter I do not believe this is in her head - she will walk again right now she is in too much pain. So he tells her she can walk and she will not leave the exam room unless she walks out. (I am encouraging her to walk even though my brain knows better) She starts crying and I am completely confused - I know my daughter better than this dr that has spent less than 1 hour with her. He left the room and then I left her crying on the exam table (boy am I stupid!) I go out to the waiting room and call her therapist and tell her what happened and she told me to leave that office and don't ever go back. I am soo confused. I thought we were working on a plan to help make her better now that this doc has done a 360 I don't know where to turn.