Hello there and welcome 
I think of all the things that helps people most is knowing that so many others are out there going through the same things and that they understand.
I live in an area where there are absolutely no support groups and little or no information. Thankfully this site has been a wonderful place to come where I have made many friends and recieved the most unbelievable support. Maybe you could encourage your Mum to take a look, read through the boards and maybe join us?
As for her hair...I have very little experience of lupus lesions, especially on the scalp. I'm just wondering if she has tried any of the very "natural" dyes such as Henna. It is messy but very gentle (and it does come in other colours than bright red!). Obviously, even with natural hair colour, she should do the 48 hour test to see if she reacts or not.
I'm sure she has already asked her dermatologist for advice. That's probably the best thing to do. Unfortunately not many docs realise just how important things like hair and skin are to people who suffer from a disease like this. Another person to ask is also a good hairdresser (she has to insisit that no, normal hairdye will not do it) as often with a good cut a lot of bald patches can be well disguised.
You could also do a search here under the search button with words like "hair dye" "reaction to hair dye" "hair loss"... as there have been many threads on similar topics.
It is so important to feel you look good as it genuinely does make you feel a whole lot better.
hugs to your Mum :hug:
Katharine
I think of all the things that helps people most is knowing that so many others are out there going through the same things and that they understand.
I live in an area where there are absolutely no support groups and little or no information. Thankfully this site has been a wonderful place to come where I have made many friends and recieved the most unbelievable support. Maybe you could encourage your Mum to take a look, read through the boards and maybe join us?
As for her hair...I have very little experience of lupus lesions, especially on the scalp. I'm just wondering if she has tried any of the very "natural" dyes such as Henna. It is messy but very gentle (and it does come in other colours than bright red!). Obviously, even with natural hair colour, she should do the 48 hour test to see if she reacts or not.
I'm sure she has already asked her dermatologist for advice. That's probably the best thing to do. Unfortunately not many docs realise just how important things like hair and skin are to people who suffer from a disease like this. Another person to ask is also a good hairdresser (she has to insisit that no, normal hairdye will not do it) as often with a good cut a lot of bald patches can be well disguised.
You could also do a search here under the search button with words like "hair dye" "reaction to hair dye" "hair loss"... as there have been many threads on similar topics.
It is so important to feel you look good as it genuinely does make you feel a whole lot better.
hugs to your Mum :hug:
Katharine
