Welcome to the forum !
I hope you get some answers soon so you are validated and can start doing whatever you decide is best.
There's so much we can do for ourselves to deal with any chronic illness apart from what your medical doctor can help with in all aspects of life.
Diet, exercise ,stress reduction strategies and techniques, prioritising and pacing oneself. not being too proud to accept whatever help is offered or available if it can be afforded. Make a regular time for yourself however short and get quality rest and sleep.
Become very well informed about how your lupus is affecting you ( get blood test results) so that you feel empowered and can develop an equal partnership with your doctor. You make sure the doctor is good as well as make informed choices about treatment options. Good doctors welcome well informed patients.
Support groups of various sorts are very useful indeed. Everything is easier to bear when you are not alone and can talk about your difficulties with people who understand and are well informed.
If you decide to go the alternative or complementary route, find a qualified medical doctor who is experienced in complementary medicines and knows about lupus and, very importantly, will work with your allopathic doctors
There are a lot of unscrupulous people out there happy to make a fast buck out of suffering people. Beware of talk of cures immune boosters and so on.
Many people lead normal lives with their lupus well controlled or in remission whether medicated or not. Keep in touch and let us know how you are getting on - when will you get your blood test results and what exactly seems to be the problem diagnosing? We'll help you all we can to live as well as possible.
Bye for now