I'm trying to find other men with lupus and how well they have been able to continue working. Seams that I am getting worse and I am afraid at some point that I will not be able to continue to travel and work out of town doing construction management.
To answer your question I worked as long as I could, about 14 years after my first symptoms began. I had a very physical demanding job with many skills required. When it got to the point I could barely move at the end of my shift every day, I knew it was time for me to stop. The financial aspect of not working is a difficult hurdle too. It's been over 4 years now since I filed for SSDI and I continue to wait for approval. Start getting things set up for yourself, it's not going to be easy if your counting on SSDI disability to be there. Good luck!