anyone one else like me ? i was diagnosed with lupus at 17 yrs old now 33 at first i was very sick and sore for years on the prednisone and plaqunil not even capabale of workin or anything else then bout the age of 22 after not gettin better and being sick i stopped using meds and goin to doctor afterr a rough cpl months i got better i no longer had stiff joints or high fevers i assume from goin into remission and takin better care of myself i have been able to lead a reasonably normal life which i NEVER thought possible went to rheumitoligist once cpl years ago he said well if anything was goin to happen it woulda happened so all was good now. but just recently i went to doctor cause i had purple spots showing up came back with a platelet count of 8k have been on 40 mg of prednisone per day now for a month things havn't stabilized he also said he ran a test and if itp shoulda came back positive but it came back neg which doesn't completly rule out itp but he wants to do a bone marrow biopsy. he didn't say what else it could be any ideas ? And also i have never been able to talk about it (lupus) or deal with it like i was ashamed about it which seems wierd never told employers and kept it away from most friends isolated myself so really have no one close to me anyone else out there? would be nice to hear from ppl with same or similar experiences.
Dan
Dan