Hello everyone
Hope you are all AWAP
I find myself here out of desperation really, I will give you a little background, but will try and make it as short as possible as I don't want to bore you all rigid:lol:
I am a 37 yr old female who up until 2.5 years ago was reasonable healthy apart from heavy periods, due to those I was told I possibly had Endo and was given a course of 6 injections called Lupron, they basically shrunk everything down and threw me into an early medically induced menopause. That is where my problems seemed to start, I started having lots of symptoms, my spine burns, feels like someone is pouring boiling or or ice cold water down it,I have electric shock type sensations maily in my spine and scalp. Pins and needles and ares of numbness which comes and goes, patches of hot spots, feels like I have spilt hot water on myself for about 50 seconds then it goes, my joints hurt although not all the time, then in the summer of last year, 2 years after I had been on the lupron came the muscle spasms/twitches cramps, started off on my left side, mostly in my hand and then withing the space of 4 weeks was all over my body, can't explain it too well, but my mulsces seem to pulse, you can see it under the skin. I seemed to have a lot happen all in that time, I felt incredibly tired, tiredness like I have never felt before, I was also dizzy and I hurt all over, this went on for about 6 weeks, every muscle twitched, I was exhausted, I went my GP who ran blood tests came back I had borderline low ferratin levels, but she thought not enough to have any effect on me.
I was referred to a Neuro, the first one was hopeless, we moved area and was seen this week by another Neuro, he is running more blood tests and gave me a chest x ray there and then (not sure why) I felt ok (ish) for a couple of months, still had the muscle twitches and the tiredness but nowhere near as bad. Although I seem to be having some kind of episode of it happening again, at the moment I am again incredibly tired, can't hardly do anything, by the time I have had a shower I have to rest again, muscle spasms are terrible again, my mouth is very sore inside and now have cracks in the corner of my mouth. I seem to have noticed that my symptoms seem to get much worse just before and during a period (I forgot to tell the Neuro that and now wondering if its relevant) I have had an episode of a rash on my cheek bone one one side, but that has only happened once during the bad time I had in the summer. I am at a loss really as to what to do, I first thought it was MS as my brother has this and it seems the symptoms are similar, but I don't know now, I have of course googled my symptoms and that brought me here many months ago but thought nooo I don't have all those symptoms, now I just don't know. My neuro didn't really say what it could be, he is sending me for nerve conduntion studies to rule things out, he also told me to prepare myself as he may call me in for a lumbar puncture, I am waiting for the results of the blood he took, think he was testing FBC, Renal, Glucose, then he wrote on B12, and ANP (I think couldn't read his writing) is he thinking along the lines of Lupus do you think?
Would be grateful for your input, does it sound silimar symptoms?
I also forgot to mention this but when I was having the bad episode I was getting problem with my thumb area, it was very painful, achey, deep burning feeling and really hurt to open my hand out fully and grip things. I totally forgot to mention this to the Neuro too and am wondering if its relevant? My hair has also been falling out since these injections, my hair is quite patch thin in places now, I haven't mentioned that either, I put alot of my symptoms down to the injections tbh but surely after 2 and a half years it would be out my system by now?
Thank you x
Hope you are all AWAP
I find myself here out of desperation really, I will give you a little background, but will try and make it as short as possible as I don't want to bore you all rigid:lol:
I am a 37 yr old female who up until 2.5 years ago was reasonable healthy apart from heavy periods, due to those I was told I possibly had Endo and was given a course of 6 injections called Lupron, they basically shrunk everything down and threw me into an early medically induced menopause. That is where my problems seemed to start, I started having lots of symptoms, my spine burns, feels like someone is pouring boiling or or ice cold water down it,I have electric shock type sensations maily in my spine and scalp. Pins and needles and ares of numbness which comes and goes, patches of hot spots, feels like I have spilt hot water on myself for about 50 seconds then it goes, my joints hurt although not all the time, then in the summer of last year, 2 years after I had been on the lupron came the muscle spasms/twitches cramps, started off on my left side, mostly in my hand and then withing the space of 4 weeks was all over my body, can't explain it too well, but my mulsces seem to pulse, you can see it under the skin. I seemed to have a lot happen all in that time, I felt incredibly tired, tiredness like I have never felt before, I was also dizzy and I hurt all over, this went on for about 6 weeks, every muscle twitched, I was exhausted, I went my GP who ran blood tests came back I had borderline low ferratin levels, but she thought not enough to have any effect on me.
I was referred to a Neuro, the first one was hopeless, we moved area and was seen this week by another Neuro, he is running more blood tests and gave me a chest x ray there and then (not sure why) I felt ok (ish) for a couple of months, still had the muscle twitches and the tiredness but nowhere near as bad. Although I seem to be having some kind of episode of it happening again, at the moment I am again incredibly tired, can't hardly do anything, by the time I have had a shower I have to rest again, muscle spasms are terrible again, my mouth is very sore inside and now have cracks in the corner of my mouth. I seem to have noticed that my symptoms seem to get much worse just before and during a period (I forgot to tell the Neuro that and now wondering if its relevant) I have had an episode of a rash on my cheek bone one one side, but that has only happened once during the bad time I had in the summer. I am at a loss really as to what to do, I first thought it was MS as my brother has this and it seems the symptoms are similar, but I don't know now, I have of course googled my symptoms and that brought me here many months ago but thought nooo I don't have all those symptoms, now I just don't know. My neuro didn't really say what it could be, he is sending me for nerve conduntion studies to rule things out, he also told me to prepare myself as he may call me in for a lumbar puncture, I am waiting for the results of the blood he took, think he was testing FBC, Renal, Glucose, then he wrote on B12, and ANP (I think couldn't read his writing) is he thinking along the lines of Lupus do you think?
Would be grateful for your input, does it sound silimar symptoms?
I also forgot to mention this but when I was having the bad episode I was getting problem with my thumb area, it was very painful, achey, deep burning feeling and really hurt to open my hand out fully and grip things. I totally forgot to mention this to the Neuro too and am wondering if its relevant? My hair has also been falling out since these injections, my hair is quite patch thin in places now, I haven't mentioned that either, I put alot of my symptoms down to the injections tbh but surely after 2 and a half years it would be out my system by now?
Thank you x
