[pompeylass]

Hi guys, after 18 months of being told I have possible MS (and they still haven't ruled it out), I was told by my GP last week that I have SLE. I'm finally getting over the shock - it felt like I was going through a bereavement. Luckily for me my GP has a sister who was diagnosed with lupus last year, so she's been learning as much as she can about it.

I'm still trying to take it all in at the moment, my poor brain can't take in much more. But it's great to know that there's such a supportive group here - I just wish none of us had to go through all this.

Hope you're all as good as can be - I'm off for a catnap now :wink2:

Allie xxx

 

[Joandublin]

Hi Allie

Welcome to the Forum. I'm sorry about your diagnosis but Im glad you found us. It takes a while to come to terms with being diagnosed with a long term chronic illness and I hope we can help you in that journey.

Thats an amazing stroke of luck about your GP's sister! That should help things tremendously for you.

Feel free to jump in and ask any questions you like. Thats what this site is all about - patient to patient support.

Looking forward to getting to know you.

Luv n stuff
Joan:rose:

 

[LolaLola]

Hello Allie, Pompey Fan then? As you can see I live not far from Portsmouth.I am glad your Doc. takes an interest.
Diagnosis is always a rough time. It does improve I promise you.
Welcome to the Site.
x Lola

 

[Mrs M]

Hi Allie and Welcome

Sorry about your diagnosis but as Joan said this site is fantastic in helping with any queries.
I'm not diagnosed just yet but going through so many tests etc.. I don't fully understand SLE and all that goes with it but I definitely understand about feeling poorly. So although I can't chip in much about the illness I can certainly listen and offer hugs when needed.

Take care
Mrs M

 

[KarolH]

Hi Allie,

Welcome to a great place. Sorry about your diagnosis but hopefully once on the right medicine you will get to feeling better soon.

I was dx with MS in 2005 but now that was changed to Lupus this past June.

Lupus is a great imitator of many auto immune things.

You will find support and a lot of great information here. Read and learn all you can. Knowledge is power and helps us deal with this disease a little better.

Nice to meet you and hope to see you in the chat room sometime.:wink2:

 

[pompeylass]

Just wanted to say thankyou

Hi, I just wanted to say thankyou to you all. Sorry it took a while but I went back into ostrich mode :lol: Too much research on the internet isn't always a good thing!! Amazingly though, it turns out that I'm not the only person in my tiny village of about 300 people to have lupus, so the two of us are going to meet up for coffee and a chat. The other lady has had it for more than twenty years and is still regarded as a bit of a superwoman in the community, so hopefully I can learn some tips for coping with SLE.

Thanks once again

Allie xxx

 

[cad]

Hi Allie,
I'm in Somerset too!
Where about's do you live?
Sorry about your diagnosis. Its good that you have come to this site though as its a great place for support and advice. Its good too that you are going to meet with someone where you live with lupus too.
I live in a small viliiage too and there is also a lady who lives down the road from me with lupus.

I hope you stat feling better soon.

Good Luck

Take Care