Hi everyone
I found this site by chance yesterday and I am sooo glad that I did. Its nice to talk to other people in the same or similar boat. So until then I actually had never spoken to anyone else with lupus. Anyway if you can be bothered I have written a bit of an intro as its been a long road to this point (I kinda rambled a bit). I look forward to chatting to you all and hearing your stories, learning from you, and just being an understanding ear when required
BTW I am a terrible speller
My name is Michelle (i prefer Shell) I live on the Mornington Peninsula which is about 1 hour from Melbourne. I am 26 years old, I am married with a 9 year old & 5 year old. I was diagnosed with SLE and Fibromyalgia about 8 months ago, but spent about 10 years looking for answers. I had 2 bowts of Glandular Fever when I was 11 & 12 years old and have never felt well for any length of time ever since.
Got tired of GP's doing the usual run of the mill tests that came back normal and then always thinking I was depressed, had Cronic Fatigue or some definatley thought I was just a hypocondriac and just wanted someone to give me pills. :wacko:
So I just started going to GP's for one complaint at a time to try to avoid that 'LOOK' However they would remember me from last week and I would get it anyway.
Ummmm dont they teach doctors about Lupus in med school????
It wasn't until a very good neuorologist ordered the ANA test when I nervously gave him the run down of my symptoms after discussing my persistant migraines. However even after getting a high positive result my referring GP just opened a text book to the most severe case of the butterfly rash I have seen so far and just simply said " you do not have lupus because you do not look like that."
I decided to look up what this Lupus was as I had never heard of it before. It all fit and I was determined to go and see another doctor therefore insisted that my GP refer me to a rheumatoligist.
Since then I have had all the tests and yes I have a diagnosis and no longer have to feel crazy as it seems Im just Loopy!
And if you could be bothered reading all my rambling I gather you must be loopy to. :rotfl: Therefore I hope to chat to you soon
Shell xo
I found this site by chance yesterday and I am sooo glad that I did. Its nice to talk to other people in the same or similar boat. So until then I actually had never spoken to anyone else with lupus. Anyway if you can be bothered I have written a bit of an intro as its been a long road to this point (I kinda rambled a bit). I look forward to chatting to you all and hearing your stories, learning from you, and just being an understanding ear when required
BTW I am a terrible speller
My name is Michelle (i prefer Shell) I live on the Mornington Peninsula which is about 1 hour from Melbourne. I am 26 years old, I am married with a 9 year old & 5 year old. I was diagnosed with SLE and Fibromyalgia about 8 months ago, but spent about 10 years looking for answers. I had 2 bowts of Glandular Fever when I was 11 & 12 years old and have never felt well for any length of time ever since.
Got tired of GP's doing the usual run of the mill tests that came back normal and then always thinking I was depressed, had Cronic Fatigue or some definatley thought I was just a hypocondriac and just wanted someone to give me pills. :wacko:
So I just started going to GP's for one complaint at a time to try to avoid that 'LOOK' However they would remember me from last week and I would get it anyway.
Ummmm dont they teach doctors about Lupus in med school????
It wasn't until a very good neuorologist ordered the ANA test when I nervously gave him the run down of my symptoms after discussing my persistant migraines. However even after getting a high positive result my referring GP just opened a text book to the most severe case of the butterfly rash I have seen so far and just simply said " you do not have lupus because you do not look like that."
I decided to look up what this Lupus was as I had never heard of it before. It all fit and I was determined to go and see another doctor therefore insisted that my GP refer me to a rheumatoligist.
Since then I have had all the tests and yes I have a diagnosis and no longer have to feel crazy as it seems Im just Loopy!
And if you could be bothered reading all my rambling I gather you must be loopy to. :rotfl: Therefore I hope to chat to you soon
Shell xo
