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Hi,

My name is Louise, I was diagnosed with SLE and Raynauds about two years ago as well. I'm not sure if I am in a flare up at the moment or not, I think i am still in the denial stage as half the time. I gave birth the my wonderful ( first and only child after the rubbish experince at the hospital, but thats another story for another day.) little man 11 months ago by c-section and my body just doesn't feel right. I can't seem to eat much no matter what it is, my husband says my son eats more in a day than I do. I have had pain in my stomach for over 6 months now especially after i eat something. I went to the doctors and they tested me for gluten intolerance which came back negative. They have told me to take iron tablets as my iron level was a little low, i have to take them for 3 months and then go back. They also suggest taking multi vitamins. I dont know where to go and see my specialist doctor or not? I dont want him giving me a lecture for not taking fish oil like he told me too 12 months ago. So i am dont know if ths is a flare up or just part of the course of having had a child? I dont think I have had a flare up before the only reason I got diagnosed was because I went to the doctors for chill blanes. Does anyone have any suggestions?
 

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Hi Tala,

Welcome to the Lupus Site. Congratulations on your little boy. Pregnancy can often set off a flare after the baby is born. I don't know the timing too well but I am sure another mom will come along with help on that part. This is a great place for support, encouragement and knowledge. I have made several friends here.

I am curious if you are being followed by a Rheumatologist? How often are you being seen if you do have one? I know different countries have different systems. Are you taking any medications to control your lupus? I certainly hope that no doctor would lecture you for failing to take fish oil. Fish oil capsules can help with the joint pain part of lupus but it can't help control Lupus.

Many of us when we flare are given a short course of steroids to knock it back down. It is really important that a specialist be aware of your current flare as it certainly sounds like a flare to me. I would also think the doctors would want you seen by a Gastroenterologist or GI doctor for short. I have gastroparesis which is a stomach issue. The stomach doesn't empty properly and causes nausea. If you don't have nausea then your lack of appetite could be part of your lupus flare. One of the symptoms of Lupus is weight loss.

Take care,
Karen
 

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Welcome to the site...

I second the GI consult - did they just do the blood test for Celiac or did they do endoscopy too? If the iron levels do not improve with supplementation then they really need to consider your stomach pain and inability to eat much as a sign that more needs to be done. Lupus can affect the digestive system in many ways, or you could have something else going on as well.

Take care!
 

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Hi Tala and :welcome: from another Aussie (NSW).

Congrats on the birth of your son. It sounds like you definitely should be seen by your specialist to get him to assess your situation, there's no need to suffer help is out there.

love
Lily
 
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