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Discussion Starter · #1 ·
Hi all
Have read all your messages for quite a while now, but just plucked up the courage to do this. DX in April 2006 at the age of 57. Came out in a rash all over body apart from face, told by GP Chicken Pox. went worse had skin biopsy, came back as basal cell carcinoma, wrong diagnosis, god help us if they can't get this right. skin biopsy re-done came back as Lupus. Sub acute cutaneous at first, but now changed to SLE. On Pred. Methotrexate, Plaquenil and allendronic acid for Osteoporosis. Sometimes wonder if it is the medication that makes me feel worse than the SLE to the point where I think should I stop it all and see how I go. Very supportive husband, but does tend to go overboard to the point where it is driving me crazy his constant "how are you feeling". Shouldn't complain. Now started to suffer with depression, on meds for this. GP hasn't a clue and didn't help when he said he had one other patient with Lupus and she was drug free, implying that I should also be drug free. Get more help from Practice Nurse and also Registrar at Hospital, spends more time discussing things with me than the Specialist.
Sorry to drone on, but need someone to speak to who knows what its all about.

Bye for now

Meryl
 

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Discussion Starter · #4 ·
Hi I am new here

Hi
Thanks for your quick replies, it is good to know I am not on my own.

Thanks once again

Meryl
 
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