Leg pains
Hi Natalie,
Firstly welcome to the site and hopefully it will help you and in turn your daughter to feel a bit better with all thats going on... it must be awful for you!
I've just been diagnosed in January and one of my key symptoms is pain in the muscles and joints. My legs are worst of all and almost permanent. I have to use special walking sticks to support my weight in order to continue to work until hopefully I can get my symptoms to go in reverse.
Just a suggestion and obviously with your daughter being younger, I'm not sure whether it would be suitable but I am on a low dose of amitryptilene which is a muscle relaxant. I worked up 10mg a time til I reached 50mg and now I'm on other medication from the consultant I have dropped back to 20/30mg a day. I have found this to be a huge help particularly at night and in general I can now have a much less painful and more restful sleep, only waking to turn for hip joint stiffness. If your doc thinks its unsuitable, the other thing my GP prescribed me is a higher than RDA of folic acid which has also helped a little. Not technically minded how it works but it seems to...
Like I said, I'm not a GP but I have found these things have helped me so they may be worth suggesting to yours. As a mother myself I know the agony you feel when your child is in pain and you feel you can't help so if at worst, its worth suggesting and if agreeable with your GP taking things into account, then anything is worth a try. I got mildly sleepy on the ami to start with (1-2 days each time the dose went up on a weekly basis) but if you take them in the evening (7pm in my case) I got very little drowsiness during the day. I have no side-effects with the folic acid.
I hope this helps a little and please keep posting so people here can hopefully keep helping,
Hugs and best wishes to you and your daughter,
Lynette