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I call my lupus... lucky lupus. I only flare about 2-3 times a year and it's fully tolerable with ibuprofen. (granted, it's about a bottle of ibuprofen a month... ha)

I search for support when I'm flaring because lupus doesn't fit into my real life. I don't really have any support. The friends that know how serious it can get now live in Chicago and Alabama... and I don't live either of those places.

My friends here don't understand despite the fact that they are healthcare professionals. One really hurt me last year when she mentioned to another friend that she just didn't understand that I was "supposedly" so sick.

So, hi everyone, I read your stories often even though I haven't shared my own. I also, am a huge dork, and I read the stories of famous people with lupus too. It helps a lot to know I'm not alone.

Thanks for reading and hope you are each well. Let me know if there's a specific board where I can just go whine and let it all out... ha :) Take care.
 
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