I am sorry about your diagnosis and fears but I hope that the support and information you will get here will be comforting and enable you to get the best care available.
Lupus is most often diagnosed between about 20 and 40 basically from when hormones kick in and the child bearing years, but we have many young members and a good number diagnosed far younger than you. So I am surprised that your docs consider you are so young.
Lupus doesn't necessarily progress but it is important to get the best treatment as soon as possible to try to get the disease under control and maintain a good quality of life and to have regular check ups for signs of worsening disease and increased involvement. The most important checks can be done by your GP - blood counts and urine tests.
What medicines are you on ? I hope your doctors are helpful and keeping a close eye on you.
Please remember that this forum is not representative of the vast majority of lupus cases. That's because people who are living normal, problem free lives with their lupus well controlled rarely post on forums.
I'm really sorry to hear you have lupus and hope that you're doing fine at the moment.
I'm not diagnosed but going through tests which is just a pain!
I thought at 29 I shouldn't feel like this but at 19 that's not fair.
You have come to such a great warm place. The people here are so fantastic and always willing to help with any questions ( I should know I've bothered them all enough in the short time I've been here:rotfl