Hi I am Samantha, i have Lupus and lots of different add ons. Things in the last few years have gone from what I thought were really bad but my Lupus is out doing itself at the moment. 4 weeks ago i was in a high dependancy unit that was so scary I could not breath for myself I just lay there fighting for each breath even with a mask that blow oxygine into me so fast i felt like i was in a wind tunnell. I now have damage to my lungs that wont just get better.
Now Lupus has moved on to my kidneys i am on my second does of anti biotics (again) to get on top of another infection.
It has been non stop or at least it fels like that for the last 5 yrs.
Is this the pattern that is to be expected, i used to get told by one of my doctors that it may subside but they dont say that any more.
Any advice would be nice.
Samantha
Now Lupus has moved on to my kidneys i am on my second does of anti biotics (again) to get on top of another infection.
It has been non stop or at least it fels like that for the last 5 yrs.
Is this the pattern that is to be expected, i used to get told by one of my doctors that it may subside but they dont say that any more.
Any advice would be nice.
Samantha