Hi, I'm Terri

Hi Terri,

I'm sorry you're having such a tough time. I don't have any support either so I know how alone and scary it feels when you're constantly sick and don't have any support. My family members, including my mother, sister, husband, in-laws, and others, actually think all of my problems will go away if I just don't acknowledge they exist! They want me to stop going to the doctor, stop taking all meds, etc. Of course they don't think they should stop obtaining medical care or stop taking meds, only that I should. Crazy!!!! You must do what you need to do to take care of yourself. This board will provide the validation and support you need when you can't find it anywhere else.

Barb

Thank you all for your suport and kindness those links were awesome mostly when i read the one on hughes syndrome. I have said non stop since the stroke that about 1 week after I started the warfrin my face stoped losing feeling on the one side but the biggest diffrence i found was the stiff neck and headachs before the stroke i easly went through 2 bottles of advil and i kept saying the headachs wont ever go away they just go up and down from like a 2 to a 10 now in the last 8 months i can count the headachs on my hands i told the doctor i feel better than i have in years they didnt seem to understand why that was and there it is in black and white i am on meds for an underactive thyroid too which it talks about memory has always been bad i just brushed that off as being dumb not sure the next step but it is so scary living in the unknown and living in pain and everyone saying "your too young wait tell your my age"

Terri,
Hi and welcome to the site. From reading your intro it sounds like you did the same thing I did and searched the net for answers and all that did is scare me to death. This site has better information and a wonderful support system. We share so much here it seems like we are all family. I know how you feel about being affraid that you will not live to see your children turn 18. I have done it and I am sure that you will also. I also know the pain can be unbearable but there are pain meds out there that can help you manage it. You have to take control of your treatment like many of us have had to do lately. Tell your doctor that you have to have something for the pain. We are happy to help you in anyway that we can and there is a chat room hope to see you in there sometime.