Thanks. Yes, reading other posts I think I'm actually very fortunate. I had sore joints last summer and when I saw my GP she did blood tests. Because one of them was abnormal she reffed me to rhumatologist straight away, and he is really nice and seems well up on all the possibilities. I've had two appts so far - lost count of the blood tests and x rays, an MRI and am waiting on a bone scan. I know one of the tests was for Lupus though so I've done some reading and it seems to make so much sense of the last few years - even the 20 years of atypical migraines i've had -I almost ant th est to be positive. Not coz I want Lupus or anything else, but so I can make sense of things - even my mental ill health fits.
Whatever it is affects me differently from day to day. Sometimes my hips are so sore it hurts to walk, other times i'm pretty much ok. I have a rash on my legs and arms all the time, and low white cell count and high ESR.
My next appt won't be till july at the soonest, and could be later if I've not had the bone scan by then. I would just like to know either way. Am I right in thinking if the test is negative I definately don't have Lupus or can it be inconclusive?