Hi Sandra, mine is always a blush ( doesn't form a scab) it's mostly either side of my nose and on my cheeks further down as well at the corners of my mouth and on the chin. I had red lines on my neck today as well. Hope that's helpful
Hiya, my rash is more of a blush, indeed on diagnosis I was a bit put out they called it a rash!! Both cheeks, not really the bridge of my nose... but sometimes neck flushes too. When I had a bad flare it definitely then raised and went onto the bridge of my nose and up between my eyes...I looked absolutely GORGEOUS!!!:rotfl:
A lupus rash can appear in those areas as well (especially the V of the neck) and I have had a malar type rash also appear on my chin. For me it's just a red blush that's permanent and it does cover both cheeks and the nose. I have gotten the neck rash too but that is bumpy red "dots" and not solid red.
I think it is still possible to be the malar rash of lupus even if it doesn't go over the nose...
Initially my rash was just a blush across the cheeks. In the past year it has blossomed to a much darker color and does now extend over the bridge of the nose. Occasionally the chin will be affected also.
I have a rash with leisions that come up anywhere that sun hits my body (neck, chest, arms, legs, hair line, and yes even in my hair sometimes). It has never scabbed up so am not sure if we are talking about the same kind of rash, but I would have to say it is not limited in where it can appear. I do hope this helps you. I hope you are feeling well and doing well also.
Hi thank you for all your replies, They have been very helpful .I went to see the rheumatologist for the first time on Monday and he said he was going to test me for lupus, I didn't think it could be because there was no rash on the bridge of my nose. now I'm not sure. The rash seems to go lighter overnight, it looks more settled first thing. Through out the day it seems to flare up at different times and when it flares it can feel quite hot, Doe's anyone else get this. I also have joint and muscle pains, headaches,fatigue ,gritty bleary eyes and anemia with no cause for 18 months, also elevated ESR 5 times highest being 35.I hope to find out whats wrong soon as i want to feel well again. my little girl who is 7 has a autoimmune disease called juvenile dermatomyositis and sometimes i feel like taking some of her prednisolone just to get some relief. Anyway i must stop moaning as i know that there are a lot of people worse of than me.
Sounds like you are feeling rotten, and you are not moaning. It must be difficult looking after your daughter and yourself when you don't feel well. I hope the blood tests show what is wrong so that they can start to treat you. Come and join us in chat sometime.
P.s. My rash was only ever across my cheeks and not on my nose, so despite my mom being adamant it was lupus (her sister had lupus and the same rash), I accepted gps diagnosis of rosacea. The treatment for rosacea never worked and my gp refused a referral to a dermy as he said I couldnt be using the treatment as it would work if I used it!! By this time it was a hideous disfiguring rash nothing would disguise and when i googled rosacea it looked nothing like it. Then other symptoms kicked in and I was started on steroids my rash disappeared and has never returned to that extent. When I went to London Lupus centre I only had a faint blush on cheeks and he instantly said you have the malar rash despite me not even mentioning it!!!! He said gps don't see the rash often enough to diagnose it and squashed the rosacea diagnosis instantly. Mine varies from hour to hour and day to day. Hope that helps and that I haven't rambled too much.
I don't have the butterfly rash at all on my face, i know 3 other people with Lupus and they have not had it either.
The other DR i was seeing said, cos i did'nt have the rash i did'nt have SLE.
But have been told that you don't always have to have the rash to have Lupus.
Initially I got the rash with the "wings" being on my cheeks, my nose was like the body of the butterfly and then up on my forhead were two streaks like the antennae. It came and went, but then was mostly "on". As the years have gone by, it has become less and less noticeable. If you look, you can see a faint outline but not too much anymore. It never got raised, but was definitely hot.
My pulmonologist was the one who first used the "L" word. He was convinced of it long before rheumy #1 (a egotistical man) would do so. Rheumy #1 got fired early on. So convinced he walks on water and keeps his feet dry.
I think the rash can vary quite a lot. As the others have said it can also be present on the neck and V line - I got it there for years and years before I got it on my face and I didn't even notice it, it's when my GP said it was quite typical that I realised.
The main "typical" thing about the lupus malar rash is that it doesn't affect the nasal folds so although it may be across the bridge of the nose and onto the cheeks it doesn't actually go into that area.
Mine is only ever present now as a slight blush on my cheeks but was originally quite raised and "hot" feeling even if it wasn't to the touch.
I found a link in our "symptoms section" to an article with a diagram of "typical" (but quite severe) malar rash. It clearly shows how the nasal folds are not affected.