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181 Posts
Hello everyone! My name is Laura and I have been reading comments and posts for almost a year or more and never introduced myself, so here it goes...
I was diagnosed almost 2+yrs ago I am now 39 (40 in Sept ughh!). I was very sick for a long time and was seeing a GI because I was losing so much weight (almost 40+ lbs in less than 3 months) and was very week and felt like I had the flu, it got really bad for a while people began rumoring that I had cancer then ms. Well my GI ran all these tests and by a fluke she called me up and said I think you have lupus, I was like lupwhat? never heard of it, so I went to see an internest (brainn fog?)doctor? and he asked me to describe my pain in colors and I was like [email protected]#!? after I did he said I was depressed and he would run the test anyway and retest my already sky high sed rate, well I went back to my car and cried because I thought after being sick for soo long and to finally feel like I had an answer was devastating, well the next day he called and apologized and said I did indeed have lupus and that I was 200+over the high along with a high sed rate and he sent me to a rheumatologists who again ran the same tests and confirmed the same, I felt like a pin cushion.
Anyway I was also diagnosed with fibro (big surprise) hypothyroid, colitis, arthralgia Oh and SLE lupus!! I have been on prednisone for the whole time since I can't take plaqniel(sp) due to high risk for detatched retna, I just went back to see my Rheum, on Wed and she finally added Imuran to the mix ( prednisone,synthroid,lyrica,librex and elevil and now the imuran) Oh and the occasional vicodin,soma,and klonopin (can't sleep) I felt like crap the 1st day of the imuran but I really feel better today I see the light hopefully, its been hard.
I know this is long...please bear with me... I have autoimmune in my family my dad has Rheumatoid arthritis, my sister has ulcerative colitis her daughter (my niece) has type 1 juevinile(sp) diabities and my sister has cushings, it was kind of like what about me mom??
I think I got sick when I was pregnant 8+yrs ago with my second child (its a boy this 1st was a girl 15+yrs ago) anyway I was very sick when I was pregnant with him I had several ear infections (bleeding bad bad bad) I had bronchitis I lost weight I had colitis so bad I asked my husband to break my finger it hurt so bad I wanted to divert the pain, I ended in early contractions and was put on brethine Yuck!! 1st panic attack they don't tell you that medicine is for asthma, I had to be hooked up to a machine for 2 hours a day seperatley and it monitored contractions then it sent the info to a nurse who called me back and would ask are you ok you had 6 contractions you need to relax (what does that mean relax) anyway I was so sick during my pregnacy that I never recovered afterward I ended up having a rash on my hand for 2 yrs they couldn't figure out what it was it looked like my hands went through a meat grinder nowit makes sense.
Anyway I still feel like they are overlooking something Does anyone else ever feel that way I mean your glad you have an answer and meds and you think I am going to be okay now but your not, I have been in a flare since Oct and it sucks the weather has been cold here in Tx its 48 right now how am I suppose to feel good in this you might as well put me in a freezer (oh and I forgot Raynauds can't forget the Raynauds)
Anyway that is me sorry so long I am originally from Ny so I am long winded but sincere and sometimes brutally honest (did I say that). I am blessed though my husband is understanding for the most part although he thinks its just a disorder not a disease, and that it should be fixed and why isn't it I keep telling him its long term and he stuck with me, we own a real estate company so we get to work from home, it really devasted me to have to quite my job while I was pregnant I use to work for Countrywide mortgage so I am kind of back in my element.
Well I have enjoyed reading everyones kind words to each other and felt it was now time to write instead of read. I have actually been a member for a while.
Well I hope to meet all of you and I hope you are all well (at least in mind if not body)
God Bless all of you and your families!!
I was diagnosed almost 2+yrs ago I am now 39 (40 in Sept ughh!). I was very sick for a long time and was seeing a GI because I was losing so much weight (almost 40+ lbs in less than 3 months) and was very week and felt like I had the flu, it got really bad for a while people began rumoring that I had cancer then ms. Well my GI ran all these tests and by a fluke she called me up and said I think you have lupus, I was like lupwhat? never heard of it, so I went to see an internest (brainn fog?)doctor? and he asked me to describe my pain in colors and I was like [email protected]#!? after I did he said I was depressed and he would run the test anyway and retest my already sky high sed rate, well I went back to my car and cried because I thought after being sick for soo long and to finally feel like I had an answer was devastating, well the next day he called and apologized and said I did indeed have lupus and that I was 200+over the high along with a high sed rate and he sent me to a rheumatologists who again ran the same tests and confirmed the same, I felt like a pin cushion.
Anyway I was also diagnosed with fibro (big surprise) hypothyroid, colitis, arthralgia Oh and SLE lupus!! I have been on prednisone for the whole time since I can't take plaqniel(sp) due to high risk for detatched retna, I just went back to see my Rheum, on Wed and she finally added Imuran to the mix ( prednisone,synthroid,lyrica,librex and elevil and now the imuran) Oh and the occasional vicodin,soma,and klonopin (can't sleep) I felt like crap the 1st day of the imuran but I really feel better today I see the light hopefully, its been hard.
I know this is long...please bear with me... I have autoimmune in my family my dad has Rheumatoid arthritis, my sister has ulcerative colitis her daughter (my niece) has type 1 juevinile(sp) diabities and my sister has cushings, it was kind of like what about me mom??
I think I got sick when I was pregnant 8+yrs ago with my second child (its a boy this 1st was a girl 15+yrs ago) anyway I was very sick when I was pregnant with him I had several ear infections (bleeding bad bad bad) I had bronchitis I lost weight I had colitis so bad I asked my husband to break my finger it hurt so bad I wanted to divert the pain, I ended in early contractions and was put on brethine Yuck!! 1st panic attack they don't tell you that medicine is for asthma, I had to be hooked up to a machine for 2 hours a day seperatley and it monitored contractions then it sent the info to a nurse who called me back and would ask are you ok you had 6 contractions you need to relax (what does that mean relax) anyway I was so sick during my pregnacy that I never recovered afterward I ended up having a rash on my hand for 2 yrs they couldn't figure out what it was it looked like my hands went through a meat grinder nowit makes sense.
Anyway I still feel like they are overlooking something Does anyone else ever feel that way I mean your glad you have an answer and meds and you think I am going to be okay now but your not, I have been in a flare since Oct and it sucks the weather has been cold here in Tx its 48 right now how am I suppose to feel good in this you might as well put me in a freezer (oh and I forgot Raynauds can't forget the Raynauds)
Anyway that is me sorry so long I am originally from Ny so I am long winded but sincere and sometimes brutally honest (did I say that). I am blessed though my husband is understanding for the most part although he thinks its just a disorder not a disease, and that it should be fixed and why isn't it I keep telling him its long term and he stuck with me, we own a real estate company so we get to work from home, it really devasted me to have to quite my job while I was pregnant I use to work for Countrywide mortgage so I am kind of back in my element.
Well I have enjoyed reading everyones kind words to each other and felt it was now time to write instead of read. I have actually been a member for a while.
Well I hope to meet all of you and I hope you are all well (at least in mind if not body)
God Bless all of you and your families!!