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Discussion Starter #1
hi im emma, 31, mum to 3 under 11, a work at home mum, studying bsc...so life is busy..but feels like its all at risk at the moment...

i havent been diagnosed yet..maybe i wont be but i have felt for the last 2 months that i may have lupus...due to my symptoms i have been "fastracked" to see a rheumatologist as usual waiting times in my area are 4-6 months..im seeing one may 18th. ive written alot down whether its related to lupus officially or not as im hoping they will look at everything.

i ignored the sun rash for the last 3 years thinking it was just one of those things as it only happens in high summer...
the 1st PE was put down to havign a baby 5 weeks before, in december it was put down to bad luck and i had to push for thrombofilia tests...they too them while i was on heparin and warfarin and have now admitted most of the results are useless...so it verymuch feels as though they just avent been interested...

anyway after a positive rheumatoid fator of 134 my gp has referred me (hes lovely and very kind,,,feels a little helpless i think as hes not a specialist) and ive also had a anticardilipin igg positive at 13.4. im muscle weak in my thighs and upper arms esepcailly, get exhausted doing the simplest tasks which is frustrating...

i feel like i cant plan anything and my usual adveenturous (get on a plane and go somewhere random), crazy personality is turning into a stay home and hide one...

i feel for you all
em x
 

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elisabethm
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Hi EM Welcome to the site you will get great advice on here and make loads of new friends.There is allways someone to give you support and help if you need to let of steem Elisabeth
 

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The Other Illinois Tammy
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Emma,
Hi and welcome to the site. I do hope that you have had a chance to read some of the other posts. I went through what you are and at first some things I did not think were even linked to lupus I did not report to my doctor. I think the site will be helpful and very supportive of you. We do have a chat room that I hope to see you in and get to know you better. It is a nice place to chat with others like you. I hope you are well and doing well.
 

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Administrator
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Hi Emma,

Welcome to the site. I hope you will find the information here useful.

It definitely sounds like your symptoms need further investigation. Be prepared that it may take time and many more tests before you get a diagnosis of any kind. You are already on the right track by making a list of all symptoms. I also suggest you take a picture of your rash when it next appears. If you are like me the rash doesn't always show itself on appointment day. Also when you say muscle weakness to a doctor that is a vague symptom. It is best to give examples such as you can't go up stairs or raise your arm to put a cup away in the cupboard, anything that gives a clearer picture of how you struggle.

Good luck with your appointment.

Take care,
Lazylegs
 

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Discussion Starter #5
thankyou for the welcome and the tips.
i guess sometimes glossing over symptoms quickly is temtping as there are so many it can make me sound liek a hypochondriac....thankfully blood test are backign up what im saying but still it can feel like im sitting there giving a lengthy essay. i have started to keep a symtoms file in the last few weeks as dizziness kicked in a cpl of times and also my right eye vision went all of a sudden...as it passed i didnt bother to say antyhign to them...but now i thiink i wil just tell them everything nd let them do the deciding!


yes im gonna take some time to look aroudn the forum as im sure i will get many helpful tips in dealing with this.
thankyou
emma
 

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Hi Em, wishing you all the best with your appointment and a Big WELCOME to the site

Sheila :)
 

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Good Luck with your appointment and welcome to the best forum in the world.

I hope you like it here as much as I do. Join us in the chat room sometime.:wink2:
 
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