Joined
·
3 Posts
I have just been diagnosed with Lupus, following a diagnoses of severe Raynauds, so I am still confused and new to it all.
Caroline
Caroline
Hi
1 - 9 of 9 Posts
Joined
·
4,369 Posts
Hi Caroline and welcome to this site!
You will find lots of kind helpful people on this site with useful information to support you!
Ask away with any questions you may have!
I hope you have the backup of a good local specialist!
Do you attend Frimley Park or Royal Surrey Guildford?
You will find lots of kind helpful people on this site with useful information to support you!
Ask away with any questions you may have!
I hope you have the backup of a good local specialist!
Do you attend Frimley Park or Royal Surrey Guildford?
Joined
·
3 Posts
My dr is Dr Mark Llyod at Frimley Park
:welcome: to the site Caroline
I hope you will find the site very useful and supportive. You will find quite a bit of information on the main site about Lupus. Make sure you check it out if you haven't already.
http://www.uklupus.co.uk/
Please feel free to ask any questions you have. Posting them on the forum helps all the members learn. You may also visit the chat room to ask questions and get an immediate answer.
Take care,
Lazylegs
I hope you will find the site very useful and supportive. You will find quite a bit of information on the main site about Lupus. Make sure you check it out if you haven't already.
http://www.uklupus.co.uk/
Please feel free to ask any questions you have. Posting them on the forum helps all the members learn. You may also visit the chat room to ask questions and get an immediate answer.
Take care,
Lazylegs
Joined
·
512 Posts
:welcome:Caroline This is a good place to be when you get the diagnosis.There is allways someone to give you some good advice.We also have a good chat room so Hope to speak to you soon Elisabeth
Joined
·
1,999 Posts
Hi Caroline,
Welcome to the board. I understand that getting a diagnosis and all can leave you reeling. We have a good mix of those who are new, as yourself, and those who are "old hands". The moderators here are also superb with an excellent mix of knowledge and the ability to find whatever you may need for answers.
Taking care of your own health may be one of the lessons we have the hardest time to master. Yet, it is one of the most vital you will find. Rest, eat well, take your medications as prescribed, and watching your sun exposure, will go a long way to helping you to survive this not so welcome companion.
As other posters have said, ask away on your questions. In these early months, you may find that keeping a journal of your feelings and symptoms will help you and your doctor to focus on the issues which are really important. Take your questions and journal to your doctor's appts with you. Never hesitate to ask questions. It is how you will learn to live and survive. And yes, just because you have lupus, does not mean that lupus has to have you. There is life in, with, and through lupus. It is just a different way of living.
Sally
Welcome to the board. I understand that getting a diagnosis and all can leave you reeling. We have a good mix of those who are new, as yourself, and those who are "old hands". The moderators here are also superb with an excellent mix of knowledge and the ability to find whatever you may need for answers.
Taking care of your own health may be one of the lessons we have the hardest time to master. Yet, it is one of the most vital you will find. Rest, eat well, take your medications as prescribed, and watching your sun exposure, will go a long way to helping you to survive this not so welcome companion.
As other posters have said, ask away on your questions. In these early months, you may find that keeping a journal of your feelings and symptoms will help you and your doctor to focus on the issues which are really important. Take your questions and journal to your doctor's appts with you. Never hesitate to ask questions. It is how you will learn to live and survive. And yes, just because you have lupus, does not mean that lupus has to have you. There is life in, with, and through lupus. It is just a different way of living.
Sally
Caroline,
It is not uncommon to be confused for a long time and even anger that this has happened to you. It can also be a relief that now you know what has been wrong and that you are not crazy and never have been. We are here if you need to vent, have questions, or just need to talk to someone.
I hope that you are handling the news well and doing well also. We have a chat room and I hope to see you in there sometime.
It is not uncommon to be confused for a long time and even anger that this has happened to you. It can also be a relief that now you know what has been wrong and that you are not crazy and never have been. We are here if you need to vent, have questions, or just need to talk to someone.
I hope that you are handling the news well and doing well also. We have a chat room and I hope to see you in there sometime.
1 - 9 of 9 Posts
Join the discussion
Join now to ask and comment!