[guineapig]

Hello all!

My name is Diane, I am the mom of 2 unique boys (both have EDS III and one has epilepsy, the other dev issues). I have recently been diagnosed with Lupus SLE. So I am in the process of learning as much as I can about this issue. I am also an EDS (Ehlers Danlos Syndrome) Types II & III. I cannot wait to get to know you folks. I live in SE Minnesota and got lucky to find a really good rheumi at Mayo Clinic. I have multiple other diagnosis labels but won't list em bc it would be a book then:lol:

Love & Light to all,
Diane

 

[Maia]

Welcome to the site - I grew up in SE Minnesota (Rochester). My dad also has a really good rheumy that he likes at Mayo. You must be going through a lot of emotion right now - I'm glad you came here and hope you find the information and support you need too. There is a great group of people here!

Take care and welcome again!

 

[LolaLola]

Hi, we are a family with EDS 111 too. How old are your boys? EDS is less painful when they stop growing rapidly.
x Lola

 

[keebler]

Hi Diane,
Welcome to the Lupus Site.

This site is full of good information about lupus.
It is great you are learning about lupus. I always say "knowledge is power", then you can talk to your doctor about your health and understand what he is trying to do for you.

The members here are very helpful and friendly.

I live a few hours from Rochester.
Take care,
Lyn

 

[fallinthruthecracks]

i live in mn as well and am really interested in any insight you have about the mayo clinic. i am gathering up my tests and want to go there for a second opinion. i'm not sure if you can pick your doctor on your first visit. but any insight you have would be much appreciated.