The Lupus Forum banner

1 - 13 of 13 Posts

·
Registered
Joined
·
7 Posts
Discussion Starter · #1 ·
Hey everyone...New to the site, figured Id introduce myself...

Im Kris, 23 yrs old, been officially diagnosed for just over a year, but have been dealing with problems for over 4 yrs. Im on a ton of drugs, but I dont have the dosages in front of me haha So i'll post em later...

Ive been having tons of problems with pleuritic-like pain breathing for the last year off and on, and its coming back again...

Im also a female, transitioning to a male, so Im on hormone treatment, testosterone. My rheumy says this could be good for my lupus as its a mainly estrogen-related disease...If the transition bothers you, please leave your hurtful comments at home, I'm just here for some help and some insight!

Thanks in advance for readin this and ill talk more soon!

Kris
 

·
Registered
Joined
·
14,661 Posts
Welcome to the forum Kris

I hope you will find it very helpful. It sounds as if your lupus is quite severe.
Lupus affects us indiscriminately of gender, race, education wealth or any of all the other things that can differentiate people in real life. You need not fear any personal comments on this forum, as we run a tight ship, with the simple and single aim of helping people live as well as possible with lupus.

Estrogen certainly was very bad for me !

Bye for now and looking forward to hearing more from you. :)

Clare
 

·
Registered
Joined
·
2,661 Posts
Hi Kris,

Welcome to the forum:wavesmile:

X C X
 

·
Registered
Joined
·
7,800 Posts
Hello Kris and welcome :)

It would be good if that extra testosterone could help with your disease activity...you'll have to keep us informed on that one though I won't be joining you even if it does :lol: I think my husband might object.

Seriously though, this is a great forum where everyone is welcome and we will do anything we can to help and support you through this illness.

As Clare said, hurtful comments are not welcome for anyone here. For my part I'm just a bit cheeky but she's got her eye on me :lol:

Katharine
 

·
Registered
Joined
·
103 Posts
Hi Kris

I can sympathise with the pleuritic pain i get it so bad sometimes it feels like a heart attack(i think). Awarm bath in a steamy room helps me , but you shouldnt stay in there for to long. Good luck with everything x x
 

·
Registered
Joined
·
7 Posts
Discussion Starter · #6 ·
Thanks for all the welcomes! Ever feel like you have those days when ur body just says 'no' and wont swallow pills? Lol I hate those days...And the depression....god does it suck!
 

·
Registered
Joined
·
2,404 Posts
Hello Kris, Big welcome to you. Yes, I know about the odd day when you want to kick against the tablets and generally behave like a naughty toddler. It is perfectly acceptable to feel that with a chronic illness. In fact I rather enjoy my sulky spells.

I half get the impression you have suffered a lot of hurtful remarks from people. I wish you all the best with what you are doing. It is not something I know anything about so if ever I say anything stupid it is just down to ignorance.
People here are lovely and we all treat each other with respect, you will fit right in.
x Lola
 

·
Registered
Joined
·
7 Posts
Discussion Starter · #8 ·
Hey hey thanks for the welcomes! So i have my dosages for pills...

Here we go...long list lol

Methotrexate : 25mg a week, injected myself
Plaquenil 200 mg twice a day
Omeprezole 20mg once daily
Folic Acid 5mg every day, except day of MTX shot
Alendronate 70mg Once weekly
Prednisone 7.5mg daily, was up to 20mg a day half a year ago...Just trying to wean me off of it...I hate that drug
Synthroid 0.075mg once daily...
Plus 1000iu of Vitamin D, and 1500mg of Elemental Calcium as well to offset the prednisone...wooo...go me...handfulls of pills...I hate it

Kris
 

·
Registered
Joined
·
64 Posts
Hi kris

Hi kris and welcome. Sounds like you have a serious capacity pill box!

I am sorry you have this so young, but perhaps lucky in a way because it hasn't been left untreated for years like some of us. I also wanted to say that I commend you on how bravely you introduced yourself. Well done to you. Hope to see you in the chat room sometime.

hugs Rose
 

·
The Other Illinois Tammy
Joined
·
1,193 Posts
Hi Kris,
Glad you found us and hope you find the site helpful and interesting. We have a chat room hope to see you in there soon. Hold on to your socks though we often get to giggling :rotfl:. I am sure along the way you will make some good friends and wish you had found us years ago.

I am Tammy and have sle lupus for 17 years now, Welcome to our little/big family :).
 

·
Pollianna
Joined
·
485 Posts
sparky_zap69;532184 said:
Im also a female, transitioning to a male, so Im on hormone treatment, testosterone. My rheumy says this could be good for my lupus as its a mainly estrogen-related disease...If the transition bothers you, please leave your hurtful comments at home,
Kris
Are you kidding, I would love to get my hands on some testosterone :lol: I am sure that is Maddona's secret to her massive energy levels. I hope it helps

I doubt seriousely that you will find any predjudice on this board. Maybe were all lucky in a way. Don't we all know as lupus sufferers who look so well, no matter what the outside looks like it's what's going on on the inside that makes the difference.
 

·
Administrator
Joined
·
10,190 Posts
Hi Sparky,

Welcome to the forum. I think you will find this a very friendly group. Everyone is here to learn and support each other. I hope you will take an opportunity to pop into the chat room. It is a great way to get instant support and make friendships.

Take care,
Lazylegs
 

·
Registered
Joined
·
7 Posts
Discussion Starter · #13 ·
pollianna;532374 said:
Are you kidding, I would love to get my hands on some testosterone :lol: I am sure that is Maddona's secret to her massive energy levels. I hope it helps

LMAO Yeah, if you want the deepening voice and hair to go with it...lol I am at the stage of a 14 yr old boy goin thru puberty...lol puberty sucked the first time, and I get to do it twice! lol :lol: Thanks for the warm welcomes, I understand the people on here are probably very nice, I just need to watch my back, y'know? Im lookin forward to checkin out the chat room soon!

Kris
 
1 - 13 of 13 Posts
Top