Hi all and glad to have popped in for a few to read some of the posts. But it exhausted me and I didn't get to read as many as I wanted !
It is a rough time.
I see that many feel the same way on here too. Tired of it. Tired of Lupus. Tired of the changes. Tired of every single thing it brings.
My full time work schedule for the past 6 weeks has taken its toll.
Pain leve sky high. Call the doctor - nope. Why? Cause he will say take steroids. Why don't I ? Because the blood pressure will drop too low for several days and I cannot subject myslef to that or to being in the ER because of it and taking time out of my new job. So what then? Take pain med? Well Darvocet as I have been reading has caused major heart related problems in some people and has toxins that remain in your body too long. If I hadn't experienced a heart related incident on that, then I would take it. But now that bottle sits there and I just can't take that chance either.
So every pain killer effects me and I can't take it, either the irregular heart beat will start up or I feel very ill, vomit, halllucinate. So what then? Nothing. I am stuck with massive pain right now because I don't know what the heck to do!
My energy level is low. I have pins and needles in my left hand and it is not carpel because they removed that nerve when I had surgery for something else.
Reynauds is acting up. This weather is driving me nuts.
If I could go and admit myself in the ER and say pump me full of anything, I would, but that anything even if it existed would give me major effects.
So I am helpless, hopeless, tired, not knowing what end is up and this post was way longer than I intended.
Eyes are hanging so getting off right now. Miss all of you and pray for you all every single day.
It is a rough time.
I see that many feel the same way on here too. Tired of it. Tired of Lupus. Tired of the changes. Tired of every single thing it brings.
My full time work schedule for the past 6 weeks has taken its toll.
Pain leve sky high. Call the doctor - nope. Why? Cause he will say take steroids. Why don't I ? Because the blood pressure will drop too low for several days and I cannot subject myslef to that or to being in the ER because of it and taking time out of my new job. So what then? Take pain med? Well Darvocet as I have been reading has caused major heart related problems in some people and has toxins that remain in your body too long. If I hadn't experienced a heart related incident on that, then I would take it. But now that bottle sits there and I just can't take that chance either.
So every pain killer effects me and I can't take it, either the irregular heart beat will start up or I feel very ill, vomit, halllucinate. So what then? Nothing. I am stuck with massive pain right now because I don't know what the heck to do!
My energy level is low. I have pins and needles in my left hand and it is not carpel because they removed that nerve when I had surgery for something else.
Reynauds is acting up. This weather is driving me nuts.
If I could go and admit myself in the ER and say pump me full of anything, I would, but that anything even if it existed would give me major effects.
So I am helpless, hopeless, tired, not knowing what end is up and this post was way longer than I intended.
Eyes are hanging so getting off right now. Miss all of you and pray for you all every single day.