[lisa292003]

Hi all,
Just a quick note to let you all where I am at.
Had started to feel a little better, then I went to a restuarant 200 yards from our home and have been layed up since that was on sat, auful pain in my hips thighs and back/neck.
Went to see NHS rheumatologist today, read my symptoms list which has gotten slighty longer! Did the push/ pulling excersises and was really studying my nails and hands(?) Then she asked me how I felt about coming into hospital - I got all upset ect and agreed, she said it is not right that for someone that is so young having what ever is wrong with me inpacting on my life as it is. She said that I will be called up within the next two weeks wants to do various tests including a muscle biopsy (I am scared) She was really nice and I felt apart from the upset of going in hospital that she didnt think I am crazy as I have thought I was turning lol! The vampires took 8 vials of blood while I was there (god Im brave!) used to faint at just one!
Anyone had a muscle biopsy?
(It turned out not to be such a quick note!)
lisa x

 

[lisa292003]

Yes guys is all very possative news knowing that im being taken seriously.
Katherine I think that the doc was looking at dermatomyositis as he tested for ovarian cancer which coinsides with it, luckly my ovaries are fine, does antone know why they would be testing my DNA as that was the only one I remembered on the list of bloods they did yesterday?

Lisa on call! x

 

[lisa292003]

Thanks guys for your replies,
Gosh I dont know what I had of done without you all, I will keep you all posted, when we got home from the oppiointment James said you should post and let you all know, he has been my rock thses last few days think it finally hit home with him ( I am good at pretending to be ok!) god knows why I was kidding myself I think.
I am ready, bags packed!
Take care all,
Lisa xxxx