Firstly, can I just say what a great and helpful site this is. I've been reading through many of the posts on here and it seems there are some top people giving advice, recommendations... and most importantly reassurances and hugs
A quick bit about myself now:
I'm a 32 year old male, living in London. I'm married to a lovely lady who will always look after me. I'm currently a civil servant. I absolutely love all my sport - especially football and surfing. Oh, and love my distant family that are Liverpool Football Club
I'm a keen vegetarian and animal and human rights activist (no cruelty to any of our fellow beings on this earth, which we have but inherited). My only weakness in terms of environmental activism is my love of fast cars and bikes. But I'm trying to work on improving on those sides
Now for the sad stuff:
A few months ago, about 2 weeks after having returned from my first ever skiing trip, I developed severe pain in both my knees, elbows, and chest.
At first I thought "hmmmmmmmm, flu". But the pain just got worse so thought it best to visit my GP. He in turn sent me for a blood test (I'm sure you all know where this is going
When the results came in I was devastated. He thought it may be arthritis :sad: This was one of THE worst things I thought could happen to me - I'm a keen sports and outdoors person... I play football, run, pump weights, and my real love I surf.
I was booked into see a Rhumatologist (sorry, can't spell the word :hehe: ). She was brilliant and done all the necessary checks and told me it could be "palindromic arthritis". At first I was totally devastated, but then thought "s0d it, I can live with it"!
However, last Thursday my life was turned upside down when I got a letter through the post from the hospital stating "likeliest diagnosis SLE".
Now, I knew very briefly what Lupus was so... ... ... well, I can't even transfer my initial fears and thoughts onto this thread, but I know all those of you who have it already know that fear.
This was a total spanner in mine and my wifes plans. We had only weeks previously planned on moving to Devon to set up a small business, where I can earn enough money to live and enjoy the rest of my life walking along the sandy beaches with my wife, whilst sneaking in a quick surf or two in the day :wink2:
But now, all of this seems like a distant dream :sad::sad:
I know I must keep out of sunlight so the beach is not a very good idea. Swimming in the sun is also not the best of things to do when you have SLE.
I had a second appt with a rhumatolagist (still can't spell it!) yesterday, who has initially diagnosed me with "mild SLE" - but I know the chances of it deteriorating to a more severe SLE are very high.
I am currently undergoing a 24 hour urine sample as some protein has been found - another excruciating piece of new
And to make matters worse, I woke up this morning with the full bout of SLE - both knees aching, wrist aching, sever sore throat, excruciating neck and head pain and a high temperature. No doubt caused by the great (or should that be, not so great) weather yesterday and severe stress.
I visited my GP also today, who has recommended I seek private care as right now my next NHS appt will be in 3 months
Problem is, I'm a lefty and out of personal beliefs I really cannot go and have private care. But then, I also do not want this thing to get a lot worse whilst I wait 3 months for my next appt. What do I do :worried:
Never have I been so worried about a poxy high temperature and sore throat :sad:
Any how. Mustn't get too down. Gonna still try and live life as much as possible. And I'm hoping we can all offer each other support.
Here's to a brighter future